Category: Disability

  • London Assembly Labour Party members have abstained on a motion calling for a Disability Equality Champion for London. This is despite the fact they had previously unanimously supported it – just nine months ago.

    Labour London Assembly members U-turn on motion for a Disability Equality Champion

    On Thursday 5 June, Mayor Sadiq Khan declined to implement the original motion the London Assembly passed with cross-party agreement on 5 September 2024. Khan claimed that his deputy mayor for communities and social justice already adequately covers disability issues.

    However Disabled People’s Organisations such as Inclusion London have repeated calls for a dedicated leader focused on disability equality in City Hall.

    Assembly Member Gareth Roberts, who proposed the motion, said:

    Nine months ago, every single party in the Assembly – including Labour – recognized that 1.2 million disabled Londoners deserve dedicated representation and leadership.

    The needs of disabled people haven’t changed, but Labour’s commitment to them seemingly has.

    London: a city of systemic exclusion for disabled people

    The motion comes as Disabled People’s Organisations continue to highlight systemic exclusion from City Hall processes. This includes the current ‘Towards a New London Plan‘ consultation which lacked accessible formats like Easy Read and BSL versions that should be available as standard issue.

    Roberts added:

    Clearly, the status quo we have at City Hall just isn’t good enough, when the lived perspective of disabled Londoners is so regularly excluded from City Hall policy and planning decisions. It’s time we had someone with the mandate and focus to turn that around.

    Liberal Democrat Assembly Member Hina Bokhari OBE, who seconded the motion, said:

    At a time when so many people are struggling and worried about the prospect of brutal cuts to PIP, it’s more important than ever that the Mayor does everything in his power to listen to, support and work alongside disabled Londoners. A more inclusive London starts with a more inclusive City Hall.

    Featured image via the Canary

    By The Canary

  • The struggles faced by individuals seeking Personal Independence Payment (PIP) have reached critical levels, with the Department for Work and Pensions (DWP) announcing that appeal processes can now take up to 13 months.

    DWP PIP appeal backlog

    The backlog, which has grown alarmingly in recent months, stands as a significant barrier for those already facing challenges due to disabilities or long-term health conditions. In a recent statement, DWP minister Stephen Timms revealed that there are currently 8,900 appeals in progress, an indication of the strained system that many vulnerable claimants must navigate.

    Timms elaborated on the challenges in the appeal process, noting:

    Although we hold information on the time between initial disallowance and appeal hearing, DWP is not solely responsible for this wait time.

    Instead, the delay is exacerbated by the involvement of His Majesty’s Courts and Tribunal Service (HMCTS), which can contribute to lengthy wait periods. Of course, the problems at HMCTS stem from years of government cuts. 

    Notably, the median wait time for appeals lodged in December 2023 was reported at an alarming 42 weeks, a time frame that underscores the systemic issues facing claimants whose livelihoods depend on timely benefits.

    Under scrutiny

    The DWP has been under intense scrutiny for its handling of the PIP appeal system, particularly as many claimants feel abandoned amid escalating financial pressures. According to recent data, the number of individuals claiming PIP has surged to an unprecedented 3.7 million.

    With new claims prioritised over award reviews, those already reliant on these benefits are left in precarious situations as they await decisions that should provide critical support.

    The appeal process for PIP can be complicated, requiring claimants to first seek a Mandatory Reconsideration—a request for the DWP to re-evaluate its decision. Unfortunately, reports indicate that these reviews now take nearly double the time compared to the previous year, highlighting the inadequacies within the DWP’s structure.

    In July 2024, the average clearance time for such reconsiderations had ballooned to 71 days, up from only 37 days in December 2023.

    On top of the long waits, the DWP itself has once again shown to be not fit for purpose.

    DWP PIP claimants: winning against the department

    More than half win their case before an independent tribunal, as recent figures show that the DWP is increasingly inclined to concede appeals before the hearing stage. This shift suggests a recognition on the part of the DWP leadership of their flawed decision-making, but it raises unsettling questions about the burden placed on individuals to fight for their livelihoods.

    Issues extend beyond just appeals. The DWP has acknowledged potential backlogs extending into years, particularly for PIP reviews, raising alarms about the long-term implications for those whose health needs remain unassessed and unsupported.

    According to estimates, some claimants might wait up to ten years before receiving necessary evaluations, jeopardising their well-being and financial stability.

    Furthermore, the DWP’s handling of PIP appeals has come under fire for its inefficiency. Reports indicate that during the 2023/2024 financial year, over £50 million was spent on resources to uphold PIP decisions, while 69% of appeals that reached tribunal hearings were won by claimants.

    Critics argue that such expenditures reveal a misguided focus on contesting fair claims rather than a commitment to supporting disabled individuals.

    An absolute shambles

    To navigate the complex DWP PIP appeal landscape, claimants are advised to seek assistance from local services like Citizens Advice, where they can receive crucial guidance and representation. The DWP’s convoluted bureaucracy can often be overwhelming, but with the help of knowledgeable advocates, many can successfully assert their rights.

    The situation paints a troubling picture of a government struggling to support some of its most vulnerable citizens.

    The growing backlog of appeals not only highlights systemic failings within the DWP but also brings to light the broader societal implications of neglecting the needs of disabled individuals and their families.

    As calls for reform grow louder, it is clear that immediate action is required to address these failures and restore faith in a system meant to provide essential support.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • Yesterday, after eight long years, a coroner ruled that Jodey Whiting’s death was the result of the Department for Work and Pensions (DWP) stopping her disability benefits.

    Jodey Whiting: the DWP killed her

    In late 2016, 42-year-old mother of nine Jodey Whiting missed a letter informing her the DWP needed to reassess her for Employment Support Allowance, which subsequently meant she missed the appointment. The reason for missing this was that she had contracted pneumonia and whilst in hospital the doctors had found a cyst on her brain.

    On 6 February 2017 she received a letter telling her the DWP had found her “fit for work” despite never completing the assessment.

    Just 15 days later she was found dead in her home surrounded by prescription drugs and handwritten notes about struggling to pay her bills and affording food. One simply read:

    I’ve had enough.

    Jodey lived with mental and physical conditions and was housebound as a result. Jodey didn’t just lose ESA that day, she also lost her housing and council tax benefits. In her suicide notes she wrote desperately about how she’d tried to find ways to pay her rent and bills.

    Inquest after inquest

    Jodey’s mother Joy Dove has campaigned tirelessly for the last eight years to ensure that the DWP was held accountable. In the initial inquest, Jodey losing her benefits wasn’t even mentioned as the reason she died by suicide. That inquest lasted just 37 minutes. As a result of Joy’s tireless campaign a second inquest was held.

    Joy told the inquest

    I know my daughter and I know it was that. It was the fact she couldn’t find a job, the worry of paying bills and being pushed out after being so vulnerable all those years.

    An independent report found that Jodey’s benefits should not have been stopped – but that came far too late.

    Helga Swidenbank, a director at the DWP who did not work there in 2017, said that opportunities to identify Jodey’s vulnerable state were missed (presumably because they didn’t actually speak to her).

    Swidenbank told the inquest:

    I understand that there is a culture shift from being process-driven to being much more compassionate.

    Whitewashing the reality

    The coroner concluded that Jodey’s death was down to the DWP stopping her benefits. However, she worryingly said that she’d heard enough about supposed changes within the DWP to not recommend any wider action be taken.

    Unfortunately, no matter how sorry and changing their ways the DWP claim to be, the truth is they are still putting disabled people’s lives at risk. Even more so now with proposed benefits cuts.

    Jodey’s case feels extremely pertinent given what is happening at the moment with DWP benefits cuts. If the proposed changes go ahead, how many more disabled people will be forced to turn to suicide due to not being able to afford to live?

    Cuts kill

    The proposed cuts would see nine in 10 claimants losing parts of their PIP in some areas, and many Universal Credit claimants struggle when their benefit is slashed or frozen at below inflation. With the new “health element” assessment being moved from Universal credit to PIP it would see what the Taking The PIP campaign called “a domino effect of financial ruin”.

    Over 3.2 million disabled people would see their benefits cut with over 700,000 families be forced deeper into poverty. An untold amount of people will end up in the same situation as Jodey, punished by a system that is supposed to protect them, unable to feed themselves or pay their rent until their only option is death.

    The cruellest thing about this though is the fact that the government and especially those in top jobs at the DWP are well aware of the disastrous effects the inhumane system can have.

    Whilst the DWP is happy to act like Jodey’s case is an isolated incident, they – and especially disability minister Stephen Timms – know this isn’t true- because they fought to uncover the truth.

    Labour ministers know the DWP is deadly

    Timms, the current minister for disabled people, was formerly chair of the Work and Pensions Select Committee. A big part of this role was putting pressure on successive Tory ministers to release reports into safeguarding and the true scale of DWP benefits deaths.

    Timms continuously in particular dragged Therese Coffey over the coals on her insistence that the department does not have a duty to safeguarding vulnerable claimants.

    The Labour government like to make a big show of being different to the Conservatives. However, the only difference many are seeing is how unashamedly cruel they are. The Tories at least had the decency to be a bit cloak and dagger about it.

    The government will no doubt be crowing about the fact that the mainstream media are reporting en masse that the coroner declared the DWP is making changes to the system. It’s our job now at the Canary to show that these are not positive changes.

    Fight back

    In the coming weeks the bill announcing the DWP cuts will be introduced to parliament. MPs will vote on whether to make these devastating cuts a reality. I implore you to join us and take action

    Email your MP if you haven’t already. Taking The PIP has a handy tool to do it quickly and easily. Sign petitions and make some noise on social media. Tag your MPs and tell them what the cuts would mean to you.

    This weekend thousands are expected to descend on London in the People’s Assembly demo. But if you can’t make that Disability Rebellion are holding one online too.

    The DWP cuts could force so many more into the same devastating decision as Jodey and the government know this – they must be stopped.

    By Rachel Charlton-Dailey

    This post was originally published on Canary.

  • The Department for Work and Pensions (DWP) has trumpeted its supposed triumph in “blocking over £1 billion in incorrect and fraudulent payments” hailing this as part of a broader effort to “protect people from falling into debt.”

    But while the government spins this as a success, the announcement is less a cause for celebration and more a sobering reminder of how disastrously broken the welfare system has become.

    Rather than demonstrating excellence, this news simply exposes the DWP’s chronic failure to do its job properly in the first place — and its continued reliance on punitive narratives that scapegoat the poorest people for its own systemic failings.

    The DWP: fixing a problem of its own making

    Let’s be clear: preventing incorrect payments, whether due to fraud or administrative error, is not a shiny new innovation — it’s the DWP’s basic responsibility. That over £1 billion in errors could occur in the first place is a damning indictment of how the department has historically been run. This isn’t some groundbreaking policy triumph; it’s damage control. The figure should raise alarm, not applause. After all, if a system is vulnerable enough to risk hemorrhaging a billion pounds, something is fundamentally rotten — and has been for some time.

    But instead of admitting this, the DWP dresses up its basic obligation as if it were an extraordinary feat. The tone of the press release is one of misplaced self-congratulation: a slick public relations exercise designed to distract from years of chaos, mismanagement, and cruelty inflicted on claimants.

    The fraud narrative: a convenient distraction

    This “achievement” also relies heavily on the department’s ongoing crusade against so-called “benefit fraud,” an issue that has been wildly overstated for political gain.

    Fraud is actually miniscule: the DWP itself has acknowledged in the past that the majority of benefit overpayments arise from honest mistakes. These are often made by claimants navigating a labyrinthine system that is neither transparent nor accessible.

    Yet, rather than simplifying processes or providing better support, the DWP has invested heavily in surveillance, data-matching technologies, and AI tools to scrutinise claimants with an intensity that borders on dystopian. In doing so, it perpetuates a toxic narrative: that those in need of state support are inherently suspect.

    This fuels public resentment, creating division and eroding solidarity — all while doing little to address the root causes of poverty.

    Protecting whom, exactly?

    The department’s claim that blocking incorrect payments “protects people from falling into debt” is especially galling. If the DWP were genuinely concerned about preventing debt, it would be addressing the:

    • Draconian sanctions regime.
    • Five-week wait for Universal Credit.
    • Woefully inadequate benefits levels that force many into rent arrears, food banks, and payday loans.

    In reality, overpayments are most often discovered after the fact, leading to the clawing back of funds from individuals already struggling to survive. These so-called “debts” — often the result of bureaucratic delay or miscommunication — are ruthlessly pursued by the DWP. It ends up pushing claimants deeper into precarity.

    There is no meaningful effort to assess the impact of these repayments on people’s mental health, family stability, or basic well-being.

    The idea that this initiative is a protective measure is not just misleading — it is grotesque.

    A record of harm, not help, at the DWP

    If the DWP is to be judged on its record, then its litany of failures speaks for itself.

    From the botched rollout of Universal Credit to countless reports of benefits being stopped for arbitrary reasons, and thousands upon thousands of claimants deaths on its watch – the department has presided over a decades of austerity-driven reforms that have inflicted untold misery on the most vulnerable.

    It has overseen systems that disproportionately harm disabled people, single parents, and those with fluctuating health conditions. It has criminalised poverty. And it has treated claimants with suspicion rather than dignity.

    For example, just on Monday 2 June a coroner ruled that the DWP had a direct hand in disabled woman Jodey Whiting taking her own life – after the department stopped her benefits.

    Yet now it expects credit for finally plugging leaks it allowed to fester for years? This is not progress. This is spin.

    The bar is on the floor

    Ultimately, this announcement reveals the depressingly low standards to which the DWP holds itself. Blocking overpayments should never be headline news. It should be the baseline. If a fire brigade proudly declared it had remembered to bring water to a fire, we would rightly question what they’ve been doing until now.

    Instead of patting itself on the back, the DWP should be apologising for its past negligence. It should be auditing its punitive practices. And it should be rethinking a system that prioritises cost-cutting over care.

    Until that happens, no amount of press releases can obscure the fact that the DWP remains a vehicle for economic punishment and systemic abuse – not social support.

    And no amount of “£1 billion saved” headlines will make up for the human cost it continues to ignore.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • A mother’s heartbreaking journey through grief has been compounded by the insensitivity of the Department for Work and Pensions (DWP). It has withdrawn all her support and effectively told her to ‘get a job’ – leaving her facing homelessness

    Tracy Hailwood: a tragic story

    Tracy Hailwood, a 54-year-old mother from Heald Green, has been left devastated after the DWP told her to simply “get a job” in the wake of her daughter Stacey’s tragic passing.

    For 33 years, Tracy devoted herself to caring for Stacey, who suffered catastrophic health issues stemming from a cardiac arrest shortly after her birth. This situation has raised pressing questions about the DWP’s handling of bereavement and the support provided to grieving parents.

    As Manchester Evening News reported, Tracy’s ordeal began when Stacey, initially a “perfectly healthy baby,” experienced a severe decline due to a medical mishap, resulting in spastic quadriplegia and a host of related conditions.

    As Tracy navigated the complexities of caring for her daughter, she was thrust into a prolonged legal battle over medical negligence, which only added to her burden. Despite eventually securing a settlement, Tracy now finds herself at a crossroads, unable to provide for her family after the death of her child.

    With no recent work history or qualifications, stemming from decades devoted to caregiving, her prospects of re-entering the job market seem bleak.

    The DWP: compounding the grief

    In the words of Tracy, “When a spouse passes away you get bereavement payments, with a child you don’t. It’s just ‘sign on, look for a job’. She told Manchester Evening News:

    I’ve been a full-time carer for more than 33 years with my daughter, I haven’t got any work history and it’s made me feel like I’m going a bit crazy.

    I’m sitting in a house I’m having to sell because I can’t afford to live here. I’m angry, you do all that caring for years because it’s your child, but you’re also saving the NHS thousands of pounds by doing it.

    I can’t afford to do anything until the house is sold and I get the money from that. That means I’m going to be homeless for a while.

    This reflects a harsh reality faced by many bereaved parents, particularly those who have been caregivers and lacked time to build a professional life. The DWP’s response to such tragedies has been met with widespread criticism, as it fails to recognise the complexity of these individual circumstances. As Manchester Evening News reported, for Tracy:

    The DWP… responded to her dire circumstances saying it ‘always provides the best possible support to those who need it. The DWP’s ‘best possible support’, it says, is ‘paying carer’s allowance for several weeks after someone’s caring role ends’.

    Many argue that bereaved parents should receive more comprehensive support during their time of profound loss.

    Abandoning parents

    Recent reports have highlighted systemic issues within the DWP, including misleading information on their website about entitlements for bereaved parents. According to MoneySavingExpert, many parents are led to believe they are entitled to significant support, only to find the reality falls far short.

    This lack of clarity can be devastating for parents already grappling with immense emotional distress.

    Tracy’s situation is not unique; the tragic cases of other families illustrate a pattern of negligence that often leads to financial turmoil during the already heart-wrenching process of mourning.

    For instance, the story of Helen Featherstone serves as a grim reminder of the consequences of inadequate support, as her son took his own life after benefits were withdrawn. The need for systemic change within the DWP is more urgent than ever.

    Moreover, the case of Jodey Whiting, a disabled woman whose death a coroner ruled the DWP effectively caused after stopping her benefits, underscores the importance of evaluating the DWP’s policies. Her mother Joy Dove has to fight the entire system to even get an accurate verdict from a coroner on Jodey’s death. 

    The ongoing struggle of parents losing Disability Living Allowance the day after their child’s death emphasises the urgency of legislative reform to protect bereaved families from sudden financial ruin.

    The DWP is institutionally cruel and callous

    With the DWP’s failure to provide a compassionate, supportive approach, countless families are left in financial disarray at the very moment they need support the most.

    As Tracy Hailwood prepares to leave her home, facing uncertain living arrangements, questions about the integrity of the support system linger. The DWP’s stoic stance towards grieving individuals is not only disheartening but raises serious ethical concerns about the obligations of the state towards its most vulnerable citizens.

    Tracy’s experience highlights a critical need for empathy and acknowledgment from systems designed to support citizens in their most vulnerable moments.

    It is imperative for the DWP to reassess its policies and practices, ensuring that those who have given everything to care for their loved ones are met with compassion, understanding, and appropriate support during their times of grief. The call for change can no longer be ignored; it’s time for reform that genuinely addresses the needs of bereaved parents like Tracy Hailwood.

    Featured image via the Canary

    By Steve Topple

  • The Department for Work and Pensions (DWP) is facing an online “rebellion” over its cuts to both Personal Independence Payment (PIP) and Universal Credit. It comes in the form of a virtual protest on Saturday 7 June. This will be happening alongside a physical one in London. And the organiser of the virtual demo says that her and her friends are doing it because house-or bed-bound people ‘deserve to have their voices heard, too’.

    The callous DWP

    Pressure is mounting on the government and the DWP over their planned cuts to chronically ill and disabled people’s benefits.

    DWP boss Liz Kendall laid out in March to ‘reform’, that is – cut – chronically ill and disabled people’s benefits. It set this out in its Pathways to Work: Reforming Benefits and Support to Get Britain Working green paper.

    Notably, the paper included a suite of regressive reforms to make it harder for people to claim disability benefits like Personal Independence Payment (PIP). The changes it’s proposing target neurodivergent, learning disabled, and those with mental health disorders. Moreover, disabled people who need help with things like cutting up food, supervision, prompting, or assistance to wash, dress, or monitor their health condition, will no longer be eligible.

    And revelations from a Freedom of Information (FOI) request has also shown that the changes will disproportionately hit PIP claimants over 50 as well. Specifically, the criteria goalpost shifts will deny 1.09 million (nearly 70% of those who could lose out) the Daily Living component of PIP. Part of this cohort is obviously also people Labour is already hammering with the Winter Fuel Payment cuts.

    Labour lies: time to call it out

    Overall, Labour and the DWP have already lied about the number of people its Green Paper plans will affect. Research keeps exposing the devastating scale of the governments planned cuts. While its impact assessment calculated 370,000 current claimants, and 420,000 future ones would lose their DWP PIP entitlement, it’s likely to be much higher than this.

    Another FOI made by a member of the public unearthed that around 209,000 people getting enhanced rate DWP PIP Daily Living will lose it. On top of this, around 1.1 million people getting the standard rate will lose it.

    In total then, nearly 1.4 million people could, on reassessment, lose their Daily Living element of DWP PIP. However, as the Canary’s Steve Topple previously noted, this doesn’t tell us how many could lose their full PIP altogether. This is because the data does not show how many of these people get standard or enhanced Mobility Element of DWP PIP.

    Nonetheless, it’s evident that the plans will be enormously detrimental for chronically ill and disabled people. And in early June, parliament is expected to vote on these plans.

    Protest in London – but also online

    It’s why the People’s Assembly ‘No To Austerity 2.0’ demo for Welfare not Warfare will bring together a wave of opposition. Together, they’ll call out the Labour’s cuts to disability benefits, Winter Fuel Payments, and proposed cuts to public services to fund increased arms spending. On 7 June, the People’s Assembly and its supporters will be uniting to demand Welfare not Warfare and No To Austerity 2.0:

    However, this is an in-person march that’s not accessible to house-or bed-bound chronically ill and disabled people.

    So, Disability Rebellion has organised a virtual protest against the DWP to coincide with the London one:

    The group’s co-founder Atalanta told the Canary:

    As a disabled person, I’ve spent years watching government after government punch down on people like me. Trapped in my bed and home for over a decade, I could only watch as cruel policies stripped away our dignity, rights, and support. I couldn’t march in the streets. I couldn’t shout my rage. I felt silenced, invisible – furious with nowhere for that rage to go. I knew I wasn’t the only one who felt like that.

    Disability Rebellion was born from that fury.

    When the proposed benefit reforms was released, I knew we needed a way to fight back – a way for disabled people to be heard even if we couldn’t be physically present at protests. From there, we grew into an online campaigning group. And that’s our power: we create space for disabled voices in a world that too often ignores us.

    Real-world protests are often inaccessible—but our voices deserve to be heard, too. This is why we started doing online protests: to give everyone a voice, even if you’re bedridden and housebound. We don’t want to leave anyone behind.

    Ignoring house-and bed-bound people (much like the DWP)

    Notably, while these DWP cuts have called for concerted boots and wheels on the ground action, it shouldn’t mean bed-bound and house-bound disabled people are left out of forging the fight back.

    In fact, chronically ill and disabled people at home are arguably some of the voices most needed. Notably, it’s this demographic who are more likely to be among those unable to work.

    Of course, it’s also the case that DWP cuts will hit them the hardest. The government has justified these plans through hostility to those who can’t work. All the while, ‘disability confident’ work-from-home part-time positions are shamefully sparse, to virtually non-existent.

    Yet to many campaign groups, people who cannot attend protests in person are often forgotten about. Moreover, as Atlanta told the Canary:

    People have told me online protest doesn’t matter. But I’ve seen the opposite. Even single tweet can open eyes. Online actions can trigger actions on the streets. DR is growing stronger by the day and we’re constantly learning new ways we can utilise social media to build our movement and contribute to driving change.

    Social media gives us direct access to MPs who are finally listening – some even standing up for us because of what we’ve said. John McDonnell and Richard Burgon are members of DR now.

    The growing rebellion among Labour MPs? I believe the combined efforts of activists online is fuelling it.

    So we are not powerless. We are fighting. And Disability Rebellion will keep fighting – online (and wherever our members want to take this) alongside other activists and movements.

    “We’re not done”

    Therefore, 7 June is a vital moment for people who cannot physically protest. So, from 12pm onwards get involved by posting about disability rights and the DWP cuts on X, Instagram, and other platforms. Use the hashtags #WelfareNotWarfare #TakingThePIP #StopTheCuts #TaxTheRich #DisabilityRebellion.

    As Atlanta summed up:

    Together, we are pushing to make all protest accessible, and we’re proud to work with any movements that share that goal. For example, we’re excited about the Taking The PIP campaign – the energy around it is electric and celebrity involvement will help amplify the voices of disabled people.

    We believe in unity and in shaking things up until we are seen and heard.

    This is just the beginning. We’re not done. Not even close.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • In the UK, an astonishing one in 11 adults serves as unpaid carers, a role that extends far beyond mere assistance. These 5.7 million people constitute a vital segment of society, providing care for their loved ones. Yet Labour’s cuts to Department for Work and Pensions (DWP) Personal Independence Payment (PIP) will cut nearly £650 million in support from around 150,000 carers. So, Carers UK has taken a stand. 

    Unpaid carers; saving the government £184 billion  – yet the DWP will cut their benefits, anyway

    Recent research has unveiled that the contribution of these unpaid carers is valued at an eye-watering £184 billion annually. However, this figure may not fully encapsulate their true worth, as a significant 36% of carers take more than three years to acknowledge their caregiving role.

    Despite their invaluable contributions, a staggering 55% of these individuals feel undervalued by society. Many are grappling with the heavy toll that caregiving takes on their mental and physical well-being.

    A recent study highlighted that eight out of ten carers foresee worsening health impacts in the coming years. Such stark reveals underline the need for greater recognition and support for these unsung heroes – not lease from the DWP. 

    DWP: cutting unpaid carers already pathetic benefits

    Thanks to DWP cuts to PIP, a staggering 150,000 people are set to lose their eligibility for Carer’s Allowance and the carer element of DWP Universal Credit, as highlighted by the latest announcements from chancellor Rachel Reeves during her Spring Statement.

    These changes come against a backdrop of significant cuts to chronically ill and disabled people’s benefits, anticipated to affect as many as 3.2 million families by 2030. According to estimates, individuals could see their annual income plummet by an average of £1,720 due to these shifts in policy.

    DWP PIP, which is crucial for so many disabled people, is split into two distinct components: daily living and mobility.

    Currently, the standard rate for the daily living part of DWP PIP requires claimants to accrue between eight and 11 points, while those eligible for the higher rate must score 12 points or more. However, a new threshold is set to be introduced in November 2026 which will require a minimum score of four points in at least one activity to qualify for the daily living component, although the mobility criteria will remain unchanged.

    Helen Walker, chief executive of Carers UK, sharply condemned the decision, describing it as “the first substantial cuts to Carer’s Allowance in decades,” and calling it an unprecedented step in the wrong direction.

    Poverty is already entrenched. Labour will make it even worse with DWP PIP cuts.

    In an interview with Manchester Evening News, she voiced serious concerns over the implications for the many unpaid carers already facing financial hardship.

    1.2 million unpaid carers already live in poverty, and 400,000 live in deep poverty in the UK.

    She further explained that DWP PIP functions as a “gateway” benefit, meaning that changes will have dire consequences on the entitlements and support available to those who are already in difficult positions.

    The DWP itself estimates that 150,000 unpaid carers will lose their entitlements to Carer’s Allowance or the carer’s element of Universal Credit.

    Moreover, the financial burden on carers is exacerbated by the revelation that Carer’s Allowance currently provides £81.90 a week to those who care for someone for a minimum of 35 hours per week, but that support is now dwindling. The carer’s allowance of DWP Universal Credit is £198.31 every four weeks.

    “The Most Valuable Portrait”

    So, to shed light on this often-overlooked group and DWP PIP cuts, Specsavers Home Visits has collaborated with Carers UK and artist Colin Davidson to create a portrait titled “The Most Valuable Portrait“:

    DWP PIP
    Colin Davidson’s “The Most Valuable Portrait” is being displayed at London’s South Bank Observation Point from 30 May to 1 June.

    This piece features carer Jaycee La Bouche, who tends to her mother, and has been symbolically valued at £184 billion to reflect the immense contributions of over a million unpaid carers.

    Davidson articulated the intent behind the project, stating, “It represents all the unpaid carers who deserve to be seen and valued.” This sentiment resonates deeply amidst a backdrop where caring responsibilities frequently go unacknowledged by the wider community.

    Carers UK echoes these concerns, asserting that the health and social care system would face a catastrophic breakdown without unpaid carers.

    Already cut to the bone and exhausted

    According to Helen Walker, chief executive of Carers UK:

    We want to see greater acknowledgment of the true value of unpaid care—a lifeline for many that often goes unrecognised.

    The combined voices of these caregivers demand not just recognition, but actionable support and resources.

    The challenges faced by unpaid carers are manifold – and that’s before the knock-on effect of DWP PIP cuts.

    Over the past decade, approximately 4.3 million individuals have stepped into caring roles, equating to around 12,000 people per day. The burden of these responsibilities is disproportionate, falling heavily on women, who comprise nearly 59% of this workforce.

    Significantly, many carers are juggling this role with paid employment; 56% of carers are managing both caregiving and holding jobs, often sacrificing their work hours. Alarmingly, 32% have been compelled to abandon their jobs altogether due to the demands of caregiving, reflecting a systemic failure to accommodate their needs.

    Additionally, a report from Carers Trust revealed that 45% of unpaid carers feel they do not receive adequate support.

    This lack of recognition is particularly acute among those from lower socioeconomic backgrounds and from Black and brown communities, who often encounter additional barriers to accessing essential services. The socio-economic impact of this caregiving crisis is profound, with many carers sacrificing their own financial stability in the process.

    DWP PIP cuts will exacerbate a crisis for unpaid carers

    According to recent census data, about 1.5 million individuals dedicate more than 50 hours a week to caregiving tasks. This commitment comes at a staggering cost—one in ten unpaid carers finds themselves in poverty, with many struggling to afford basic necessities like food and heating.

    The government’s failure to provide adequate support not only jeopardises the well-being of these individuals but also places immense strain on the broader social care system.

    Now, that lack of support – such as giving unpaid carers the equivalent of the minimum wage – will be exacerbated by DWP PIP cuts. It is astonishing that, given these people save the government so much money, it still wants to cut support for some of them.

    Carers UK has taken an admirable stand. Now, further action needs to manifest to stop these cuts in their tracks.

    Featured image via Specsavers/Carers UK/Colin Davidson

    By Steve Topple

    This post was originally published on Canary.

  • Rachel Charlton-Dailey looks at ‘Taking The PIP’ – a new campaign around Labour’s cuts to Department for Work and Pensions (DWP) support for chronically ill and disabled people

    I’ve been horrendously busy this week, as after weeks of organising a campaign I’ve been working hard to pull together to take a stand against disability benefits cuts finally launched on Tuesday 27 May.

    Taking The PIP is a national campaign which is headed up by some of the most well-known disabled people in the UK. To launch the campaign a letter was sent to the prime minister demanding that the inhumane DWP PIP and Universal Credit benefits cuts, which would destroy the lives of disabled people, are scrapped.

    The letter was signed by over 100 disabled people from the worlds of TV, film, sport, media, the arts, and DDPOs. Signatories include Jack Thorne, Liz Carr, Francesca Martinez, Ruth Madeley, and Lee Ridley.

    As we said in the letter:

    If these plans go ahead, 700,000 families already living in poverty will face further devastation. Over 3.2 million disabled people and their families will be affected. This is not reform; it is cruelty by policy.

    The campaign was organised by a small core team of us who have worked our socks off around the clock for the last few weeks, despite all being multiply disabled. It includes myself and actors and campaigners Cherylee Houston, Lisa Hamilton, and Natalie Amber.

    DWP PIP and Universal Credit cuts: we’re angry, and so should everyone be

    We started the campaign because we were all so angry and crushed by what the government want to do to our community.

    Whilst I’m loathed to ever call myself a celebrity and I’m certainly not in the same calibre as many on this list, I’d be foolish not to acknowledge that I do have a significant following and want to use that as always to hold the government to account. You all know how close to my heart this issue is by now and I would never put my name behind a campaign that was all mouth and no trousers.

    I’ve had the huge honour these last few weeks to work with these incredibly passionate, driven, hilarious, angry, kind souls. Our daily Zooms have been filled with anger but also compassion and a drive to make a fucking difference in a world that wants disabled people hidden and silent.

    It’s worth pointing out that the campaign is fighting for a U-turn of ALL the benefits cuts proposals.

    Whilst it’s called Taking the PIP, we aren’t just focusing on the changes to DWP PIP. We know how catastrophic cuts to Universal Credit, ESA, and Access to Work would be and would never want to contribute to the “worthy disabled who works vs layabout” narrative. ALL disabled people who need benefits deserve to have them. The name was chosen cos we all thought it was funny, in a juvenile way.

    We’re not reinventing the wheel

    Whilst the letter launched the campaign, it’s not about a bunch of people in the public eye trying to speak over others and act like we reinvented the wheel.

    Taking The PIP by no means wants to act like there isn’t already incredible work happening to fight back against the government, but we also know that we’re lucky to have our platforms and want to use them to raise public awareness of what disabled people are facing via DWP PIP, Universal Credit, and other cuts.

    The truth of the matter is none of us want to be doing this. It shouldn’t take famous people for the public to take notice of how horrific these cuts could be.

    Jack Thorne said:

    I don’t think people are truly aware of the damage these PIP cuts could do. We desperately need people’s attention on this issue. I hope this campaign will cause people to look up and take notice

    The fact of the matter is that whilst disabled people and their families are struggling, many non-disabled people won’t know as much about the reality of the situation.

    They aren’t hearing about how disabled people will struggle to pay their bills, feed their families, keep a roof over their head and ultimately will die if these DWP PIP, Universal Credit, Access to Work, and other cuts go ahead.

    And make no mistake: this is massively down to how much bullshit is willfully being spread by the media and government about lazy scroungers taking the taxpayer for a ride.

    DWP PIP and Universal Credit cuts will decimate lives

    Cherylee Houston told me:

    The stark reality is this is going to decimate lives, people are telling me they’re terrified about what will happen as they won’t be able to afford their bills and food, let alone the additional costs that come with disability.

    Someone told me they wouldn’t be able to afford their incontinence pads since the number they were given a day has been cut to three, let alone food or to get their wheelchair repaired. The disability cuts are a brutal attack on the most vulnerable in our society and this threat needs to be halted immediately.

    And whilst we might all have a public profile that doesn’t mean the DWP PIP and other cuts wont affect us.

    I can only work more relaxed hours to accommodate my ever-changing disabilities. Some of us who rely on Access to Work would be forced to give up the careers we love due to the horrendous cuts – such as Jess Thom. We want to raise awareness of just how much the “getting Britain working” story is just that – fictitious, because these cuts will only make it harder for disabled people to work.

    Beyond the letter, we want to keep this momentum up via social media. We’re asking disabled people to use the hashtag #TakingThePIP to share their experiences and what the cuts to DWP PIP and Universal Credit would mean to them, share their anger, and ultimately show that we are fighting back.

    Fight back

    Whilst this is going to be a long fight, people need to take action now, as we’re only a few weeks away from the Commons debate. That’s why we’re massively encouraging people to sign existing petitions as well as taking the fight to MPs.

    We’ve made it super-easy for you to write to your MP and ask them to oppose these DWP PIP and Universal Credit cuts with our write to your MP tool. If you’re unsure on how your MP feels about the cuts, Mad Youth Organise has created a tool to see if your MP opposes the cuts or not.

    In my opinion, a big reason that the government can propose these cuts is that they’ve worked with the media to turn the public against us for decades now. The media narrative is that these DWP PIP and Universal Credit cuts are a good thing because they save money and will get disabled people back into work.

    We need to turn the narrative back around, and shine a harsh light on the brutality of these cuts. But most importantly we want the many disabled people who feel that they don’t have a voice to know that we and many other disabled peoples organisations and campaigners are fighting for them.

    Featured image via the Canary

    By Rachel Charlton-Dailey

    This post was originally published on Canary.

  • Examples from six countries include segregated housing for Roma and holding centres for asylum seekers

    Hundreds of millions in European Union funds have been used in projects that violate the rights of marginalised communities, a report alleges, citing initiatives such as segregated housing for Roma, residential institutions for children with disabilities and holding centres for asylum seekers.

    The report, based on information compiled by eight NGOs from across Europe, looks at 63 projects in six countries. Together these projects are believed to have received more than €1bn in funding from the European Union, laying bare a seemingly “low understanding” of fundamental rights across the bloc, according to one of the authors of the EU-funded report.

    Continue reading…

    This post was originally published on Human rights | The Guardian.

  • Disabled people across the UK, particularly in traditionally Labour-supporting regions, face the looming threat of reduced financial support due to proposed reforms to Department for Work and Pensions (DWP) Personal Independence Payment (PIP). But we now know that those in the Midlands and Wales are most at risk – thanks to research from the iPaper

    Wales and the Midlands: stripped of DWP PIP

    The government’s plans, which aim to tighten DWP PIP eligibility criteria, could lead to devastating impacts on vulnerable individuals relying on these benefits to navigate daily life.

    In Wales, an alarming 90% of the 91,000 PIP claimants currently on the standard rate daily living allowance could find themselves ineligible if reassessed under new rules set to take effect from November 2026.

    Similarly, in the East Midlands and West Midlands, the threat extends to 89% of claimants, suggesting that the reforms, aimed at cutting welfare costs, stand to affect the most vulnerable members of society.

    The new regulations stipulate that claimants must score at least four points in one of the daily living categories to qualify for the standard benefit, which provides support for essential tasks such as managing finances, maintaining hygiene, and socialising.

    This stringent criterion has sparked outrage, especially among mental health advocates who fear that individuals struggling with conditions such as anxiety and depression may be disproportionately affected. As one MP involved in the opposition voiced, the proposed cuts disregard the complex daily challenges faced by those with less visible disabilities.

    The tip of the iceberg

    But the huge numbers in Wales and the Midlands who will see the DWP cut their support are just the tip of the iceberg.

    As the Canary previously reported, as a minimum and according to a DWP impact assessment, as many as 370,000 current claimants could lose their PIP entitlement due to changes in eligibility rules set to be implemented in November 2026, pending parliamentary approval.

    But crucially, about 430,000 future applicants are anticipated to be denied the benefit, creating an average annual loss of around £4,500 for those affected. Therefore, Bryant’s 90% figure is not accurate – because people, including children transitioning from Disability Living Allowance to PIP – will lose out.

    So, the figure is nearer 20% – not 10% – based on the DWP’s own data – plus 150,000 carers who will also lose their Carer’s Allowance.

    However, this is all just before the end of 2028/29. The long-term picture is horrifying.

    A horrifying picture emerging of DWP PIP cuts

    The changes to DWP PIP Kendall is proposing target neurodivergent, learning disabled, and those with mental health disorders. Moreover, disabled people who need help with things like cutting up food, supervision, prompting, or assistance to wash, dress, or monitor their health condition, will no longer be eligible.

    And revelations from a Freedom of Information (FOI) request has also shown that the changes will disproportionately hit PIP claimants over 50 as well. Specifically, the criteria goalpost shifts will deny 1.09 million (nearly 70% of those who could lose out) the Daily Living component of PIP. Part of this cohort is obviously also people Labour is already hammering with the Winter Fuel Payment cuts.

    Another FOI made by a member of the public unearthed that around 209,000 people getting enhanced rate DWP PIP Daily Living will lose it. On top of this, around 1.1 million people getting the standard rate will lose it.

    In total then, nearly 1.4 million people could, on reassessment, lose their Daily Living element of DWP PIP. However, as the Canary’s Steve Topple previously noted, this doesn’t tell us how many could lose their full PIP altogether. This is because the data does not show how many of these people get standard or enhanced Mobility Element of DWP PIP.

    Nonetheless, it’s evident that the plans will be enormously detrimental for chronically ill and disabled people.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • Chronically ill and disabled people are speaking out about the cruelty and incompetence of Department for Work and Pensions (DWP) Personal Independence Payment (PIP) assessors. Importantly, this comes in the midst of the government attempting to paint claimants as ‘scroungers’ and ‘benefit cheats’ – and cutting their benefits accordingly.

    ‘Do you watch TikTok?’

    On May 28, the Canary published an article recounting a story in which a DWP PIP assessor asked a claimant, ‘Do you watch TikTok?’.

    Obviously, the claimant expected serious questions related to their health condition. Instead, the assessor asked something probably intended to deceive. Because clearly, if someone can press one button to open TikTok, they can’t be disabled.

    What the government are not reporting is that a staggering £870 million in DWP PIP support went unclaimed between 2023 and 2024. This means that many potential claimants, unable to navigate the convoluted processes or fearing judgment and scrutiny, miss out on vital support.

    The DWP claims its PIP assessments are meant to evaluate how conditions affect day-to-day activities, so they have introduced revamped guides and resources on their website in an effort to aid potential claimants.

    A common experience in DWP PIP assessments

    After publishing the original story, the Canary was met with dozens of replies detailing horrendous PIP assessment experiences.

    Shockingly, some of the replies even included ridiculous personal questions about sex. Apparently, disabled people can’t have sex now, either.

    TinyStern:

    I suffer from complete social withdrawal as a result of other conditions. Assessor asked how often I have sex! I said never, as I’m asexual. Assessor: a ha! so you must masturbate then! Er, I think that says more about them than me. Disgraceful.

    RobinFrenchFoto:

    At my public appeal tribunal, I was asked about sex and how we managed it, positions etc. in front of my wife & CAB advocate (not allowed to speak) for 20 minutes, then admonished for going over their time – clock was behind me so that was on them. Diminish, demean, destroy

    Pill Counter Kel:

    I was asked if I still had Lupus. I was asked about sex with my husband. The report questioned how do my job (pharmacist) if I can’t walk far- they’d made assumptions I worked in a community pharmacy- if they’d asked I’d have told them-I work a desk job mostly at home

    Liar liar

    Then, there were countless reports of assessors straight up lying.

    Wildbear: 

    My assessor claimed I’d made him a cup of coffee, and managed to climb stairs with no problem. I never even left my recliner in the assessment, my carer made his coffee for him.

    NapQueen3000:

    My assessor lied. She said I was sat up and fine during my telephone assessment. I wasn’t. I was lying in a dark room, like I had been for weeks and weeks because I was so unwell. She said I was talking fine but I remember stopping multiple times because I couldn’t remember words

    She said I could do things that I know at the time I wasn’t able to do, she just completely made up the entire thing, but I got rejected and again on appeal because of what she said. I complained to Capita in December and they never got back to me. I gave up on PIP after that.

    The Northern Soul Tornado:

    Apparently when I had cancer and was being fed through a NG tube, they put me down as ‘eats a normal diet’. Was also scored zero because I use the tram when I have ME crash.

    AKA The Raspberry 

    I fell, hit head, had seizure, screaming, crying, vomiting. Ambulance called: HR over 220, BP 195/160. Atos Dr said I “allowed” myself to fall and wrote “all vitals normal” on report. While on the floor Dr insisted I sign for the recording, said illegal for my wife to sign for it

    DWP ignorance, or a carefully executed PIP plan?

    And when it comes to suicidal ideation, the assessors are even more clueless. From suggesting that if you haven’t tried to kill yourself, you can’t be serious, to telling claimants it’s the ‘coward’s way out’, maybe they think making an already suicidal person feel worse is a pretty fast way to close a claim.

    caroline dawson:

    On my assessment they asked me why I hadn’t managed kill myself yet. Honestly we were in shock at the wording. Disgusting

    Emma:

    I was asked about my brother’s suicide and the GP assessing me told me it was the cowards way out. I’d also admitted to having suicide attempts myself. I put a complaint in but it was kicked around until they said she was no longer working for them and nothing they could do.

    0x0x:

    Yes. “If you’re suicidal why aren’t you dead yet” “what method would you use if you tried to kill yourself” ” When did you last attempt suicide, what method did you use”? I’m was in the substantial risk group.

    Kerry McGuinness

    My son is autistic and has suicidal thoughts, the assessor asked about it and replied “but he hasn’t actually done it though” like it was nothing. Also asked if he could tell if chicken was cooked properly he replied “No” they still put he was capable of cooking that’s just a few

    TheFishCreates:

    years ago, the assessor implied that if I was actually depressed I’d have killed myself already.

    Over and over again, DWP PIP assessors show their complete lack of knowledge of common health conditions and disabilities.

    Colin Rispin:

    I was asked when my MS “would get better?”

    Either that, or they are the second coming of Jesus and are going to cure claimants themselves.

    DWP PIP is still not fit for purpose

    Back in 2017, the Canary reported on the DWP’s ‘kill yourself‘ scandal. Essentially, DWP assessors were asking claimants why they hadn’t killed themselves. At the time, the DWP told the Canary that assessors were receiving training on mental health conditions, “including social issues”.

    Disgustingly, eight years on, they are still asking this – even at a time when the Labour government is planning to cut and restrict access to DWP PIP even further.

    The responses to the Canary’s callout show that time after time, PIP assessors are treating people like criminals. The complete lack of basic human decency is astounding. The expectation that chronically ill and disabled people cannot use social media, have sex, or have any sort of pleasure because they are asking for support with their disability is absurd.

    But let’s be real, the assessor’s ability to fabricate the truth and straight up lie shows that the system we are living in, which is designed to dehumanise the most vulnerable, is working exactly how our government intended.

    Featured image via the Canary

    By HG

  • This year’s Indie News Week is happening in June – and the Canary is proud to be involved. But this is also chronically ill and disabled people’s chance to be involved, too – to have your voices heard over what a truly inclusive and representative independent media outlet should look like.

    Indie News Week 2025

    The Public Interest News Foundation said of Indie News Week:

    Democracy is under attack and trust in institutions is low. Many people depend on social media for news and disinformation is on the rise, causing tension between communities and even violence. People need information and shared understandings to participate meaningfully in their community…. No news is bad news. Something needs to change.  

    Communities deserve healthy news ecosystems that facilitate the free flow of information, speak truth to power and shine a light on important issues. Local news providers in the PINF network are meeting this challenge head-on! Across the country, indie news is strengthening democracy, holding power to account, creating pride in place, and fostering civic participation. 

    However, big tech greed, corporate takeovers and declining advertising mean that providers are still having to fight to keep independent news alive. More than ever, structural change is needed to regenerate independent news in the UK. We need politicians, publics and philanthropists to seriously throw their support behind indie providers. 

    So, the Canary is pleased to be participating in this year’s Indie News Week. It runs from 9-15 June, and aims to showcase some of the best local and national independent media outlets and networks around the UK.

    Indie News Week is primarily focused on independent local outlets that are pushing back against the tide of corporate behemoths that have encroached into the space of local news. These providers, like Reach, do not care for local people nor their best interests.

    Take the numerous “Live” sites (Cornwall Live, Somerset Live, and so on). they do nothing for local people except provide them with clickbait and nationally-syndicated, AI-generated slop.

    So, Indie News Week is trying to redress the balance. But this year, national, online-only independent media outlets have been invited to participate if they have a community or communities they represent.

    That’s why the Canary is involved.

    Amplifying chronically ill and disabled people’s voices

    Since we launched in 2015, we have always made it our mission to amplify the voices of marginalised communities – none more so than chronically ill and disabled people. The corporate media poorly represents these communities – from Birmingham Live’s clickbait to the Guardian’s platforming of harmful junk science around ME/CFS

    That where you can get involved with us, this year.

    Much of our coverage focuses on the issues affecting chronically ill, disabled, and non-working people.

    As a team, the majority (90%) of us are either disabled (45%), neurodivergent (54%), or both. For example, 27% of our team live with myalgic encephalomyelitis (ME/CFS). We have a writer who lives with Lupus. Another lives with Ehlers-Danlos syndrome. And several of us live with complex post-traumatic stress disorder (CPTSD).

    The point being, we live chronic illness, disability, and have lived worklessness. We get it. But we can always do better in how we amplify the communities we’re part of.

    Meet us so we can meet you

    So, we want to meet our chronically ill and disabled readers face-to-face – virtually, of course.

    We’ve organised two Zoom meetings on Wednesday 11 June which we want our readers who are chronically ill or disabled to come to. We want you to be able to meet us (many of our journalists will be there) and ask us questions. However, most importantly we want you to tell us what you need from a media outlet, so it truly represents the challenges you face, or those the system forces upon you. The Canary team also want your feedback on what we do well, and what we could do better.

    The first Zoom meeting will be at 11am on 11 June for around an hour. You can register for that here.

    The second Zoom meeting will be at 6pm on 11 June for around an hour. You can register for that here.

    Captions will be on. There’s no requirement for people to speak or show their faces – you can drop messages into the chat if you want to comment.

    To be clear, both meetings will be the same. We’re holding two as we know many chronically ill and disabled people function better at different times of day.

    Please do get involved, as we really want to meet and chat with you.

    Indie News Week: no news is bad news

    The Canary is not owned by a big corporation, nor do we want to rely solely on advertisers for revenue. Our aim is to be a fully independent news publication, completely funded by our readers. So the more people who can pledge a few quid per month, the more sustainable we can become. 

    Our purpose is to investigate the issues affecting marginalised people. We want to keep them informed of the things they wouldn’t otherwise know. Meanwhile, we make sure we’re holding politicians, corporate media, and corporations – those in power – to account. In turn, our readers hold our journalism to account, which is why we’re committed to a strict code of ethical standards and are regulated by IMPRESS.

    Good journalism costs money. So how can we cover our costs in the current climate where traditional business models have become too unreliable? We could write sensational stories that lure readers in so that we can impress advertisers with how many views our website gets, thus securing revenue from ads.

    Or we could concentrate on the stories that matter, the ones that inform you what’s really going on in your communities– things you ought to know about. 

    We prefer to do the latter – but we need you to help us make that happen.

    Remember, no news is bad news. The Canary only exists with your support – and can only continue to if you donate to us. So, join us on 11 June, and please set up a monthly contribution if you can, here.

    Featured image via the Canary

    By The Canary

    This post was originally published on Canary.

  • Revelations around a Department for Work and Pensions (DWP) Personal Independence Payment (PIP) assessment have sparked fresh concerns about the relevance and sensitivity of assessors’ approach to chronically ill and disabled people – just as the government further embeds the narrative that claimants are ‘scroungers’ and ‘benefit cheats’.

    “Do you watch TikTok”?

    In a story that highlights ongoing concerns surrounding the DWP PIP assessment process, a claimant recently recounted a bizarre question an assessor asked them:

    Do you watch TikTok?

    The claimant, whose expectations for a serious evaluation were dashed, felt that such a question was irrelevant and perhaps intended to deceive. They expressed frustration on Reddit, stating:

    I found that highly irrelevant but it felt like some sort of trick.

    It’s highly likely that the assessor asked the claimant this for one of two reasons. Either they were phishing to see if the person spent time on social media (and if so, surely they shouldn’t need so much support from DWP PIP). Or the assessor was trying to coerce them into admitting they got information about the assessment process from TikTok (another government propaganda campaign currently ongoing).

    Other people agreed – suggesting that assessors often probe into areas beyond direct health inquiries, possibly believing that understanding a claimant’s social engagement can reflect on their motor skills and cognitive functions. Yet, critics argue that this may trivialise the serious nature of disabilities.

    DWP PIP is failing disabled people

    A woman from Somerset described the entire PIP application process as “emotionally draining,” underscoring the psychological toll that lengthy and seemingly irrelevant forms can impose on those already facing significant challenges.

    In this context, the inquiry about TikTok seems almost incredulous, as individuals endure extensive evaluations centred on their health conditions.

    Statistics only compound the distress surrounding the PIP system. Recent data revealed that a staggering £870 million in DWP PIP support went unclaimed between 2023 and 2024. Many potential claimants, unable to navigate the convoluted processes or fearing judgment and scrutiny, miss out on vital support.

    This situation highlights a significant gap in the assistance designed for chronically ill and disabled people, where the government’s focus appears misaligned with the real needs of the communities it aims to serve.

    The DWP claims its PIP assessments are meant to evaluate how conditions affect day-to-day activities, and they have introduced revamped guides and resources on their website in an effort to aid potential claimants.

    However, the reality indicates that while digital resources are available, the essence of assessment remains unchanged.

    Catching disabled people out via DWP PIP

    Citizens Advice encourages claimants to detail how their condition affects daily life and offers guidance on preparing for assessments—suggesting that individuals bring evidence and a companion for support. Still, the system overlooks a crucial aspect: how might repetitive and irrelevant questioning engage, rather than uplift, individuals navigating their disabilities?

    The move to remote assessments, coupled with a stark tendency towards efficiency over empathy, has rendered many claimants feeling unheard and undervalued in their search for support.

    The experience of the claimant and the wider sentiments expressed reveal a long-held frustration at the DWP’s approach to PIP assessments. Of course, none of this is new. The Canary documented the so-called ‘DWP kill yourself‘ scandal – where assessors were asking claimants why they hadn’t taken their own lives yet.

    They underline a significant disconnect between the government’s intention to streamline services and the real-world implications these decisions hold for disabled communities.

    As DWP PIP assessments persist in their convoluted and daunting form, the question lingers: are those tasked with evaluating individuals’ needs listening closely enough to the voices of those they aim to assist, or are they merely conducting a checkbox exercise, far removed from the complex realities faced by many – and more often than not, trying to catch them out?

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • Almost half of people living with multiple sclerosis (MS) have been forced to leave their jobs due to inadequate support from both the Department for Work and Pensions (DWP) and their employers. The urgency of this situation is underscored as the DWP plans to mete out regressive cuts to Personal Independence Payment (PIP), a vital benefit relied upon by more than half of those surveyed.

    DWP is already abandoning people living with MS

    Sarah Martin, a 51-year-old civil servant from Ramsbottom, epitomises the challenges faced by many. Living with relapsing multiple sclerosis, Sarah has benefited from DWP PIP to help manage her living costs, which have soared due to her condition.

    “Receiving PIP means that I can afford to work part-time and better manage my symptoms,” she explained. However, the looming government cuts to this support threaten to upend her fragile balance between work and health.

    If reassessed under new criteria, Sarah fears losing her daily living allowance, which could compel her to return to full-time work. This, she warns, would exacerbate her symptoms and lead to more frequent sick leave—a detrimental cycle for both her health and finances.

    The government’s proposed changes have not gone unnoticed, with Ross Barrett, policy manager at the MS Society, urging officials to reconsider. He stated that many individuals with MS are leaving work not by choice, but due to financial pressures that force them to compromise their health.

    “Living with MS can be debilitating, exhausting and unpredictable – not to mention expensive,” Barrett added. Access to DWP PIP enables these individuals to manage the extra costs associated with their condition, such as hiring carers for essential daily activities.

    Workplaces are not accessible, still

    In tandem with DWP PIP shortcomings, these workers often face adversities at the workplace. Nearly half of respondents indicated that a better understanding of MS from their employers could have made a critical difference in their ability to remain employed.

    Additionally, 41% expressed that a lack of reasonable adjustments, like flexible working hours, also drove them towards leaving their roles. Alarmingly, a third of those still working hold jobs below their skill levels, often due to a lack of support that leaves them feeling undervalued and unrecognised.

    Ben Harrison, director of the Work Foundation, stressed the importance of comprehensive support from both the government and employers to enable those with MS to continue leading productive working lives.

    “It’s critical that the government rethinks its plans to cut back access to welfare payments,” he emphasised. “Doing so could actually lead to fewer people with conditions like MS being able to enter and remain in work in the future.”

    The recent report highlights an overwhelming sentiment among workers with MS—they desire meaningful employment, yet systemic barriers continue to impede their progress.

    Institutional failures -including DWP PIP inadequacy

    This aligns with findings from the MS Society which reported an employment rate for people with MS at only 41%, starkly contrasted to the 81% employment rate among non-disabled people.

    Moreover, a scoping review revealed that only a fraction of those with MS manage to maintain full-time employment ten years after diagnosis.

    Facing fluctuating symptoms, many are compelled to reduce their working hours or even retire prematurely, with DWP financial support playing a crucial role in easing this journey. The situation has reached a point where a staggering 75% of non-medical costs associated with MS are self-funded by individuals, placing immense pressure on their already strained finances.

    Disability benefits like DWP PIP are not merely financial aids; they represent a lifeline for many who wish to maintain their independence while living with a debilitating condition.

    The pressure of recent policy shifts is jeopardising this very dream for individuals like Sarah.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • Labour MP David Pinto-Duschinsky has jumped on his LabourList soapbox to defend Department for Work and Pensions (DWP) boss Liz Kendall’s callous cuts to chronically ill and disabled people’s benefits – specifically Personal Independence Payment (PIP) and Universal Credit.

    It comes the day after the DWP committee – that he’s a member of – lambasted the cuts in a letter to the prime minister.

    DWP PIP and universal credit cuts: committee calls government to halt

    The Work and Pensions Committee has been conducting an inquiry into the government’s Pathways to Work Green Paper plans for DWP PIP and Universal Credit.

    In particular, the inquiry is intending to look at the impacts of these DWP policy changes on disabled people. Moreover, it aims to unpack the poverty and employment effects of the reforms.

    Now, the committee has advised the government to pause its plans for parliament to vote on some of these reforms in early June. As ITV News reported:

    Prime Minister Sir Keir Starmer is being advised to urgently pause the Government’s plans to cut disability and health benefits by Parliament’s work and pensions committee, ITV News can reveal.

    The cross-party group, chaired by Labour MP Debbie Abrahams, has expedited the conclusions of a report into the reforms – and has said they should not go ahead without a comprehensive impact assessment.

    The politicians say that disabled people must also be consulted before MPs are asked to vote on the reforms.

    After hearing from a series of experts, the group warns of possible unintended consequences.

    However, the ink had barely dried when one member of the committee decided to contradict the whole thing.

    A ‘fulfilment’ of Labour values

    The DWP committee sent the letter to Starmer on Wednesday 21 May. By 6am the morning 22 May, committee member David Pinto-Duschinsky had a column on LabourList titled:

    ‘Welfare reform is not a betrayal of Labour values – it’s their fulfilment’

    He opened with some dewy-eyed Clement Attlee welfare state nostalgia:

    The creation of the modern welfare state by the 1945 Labour government remains one of the party’s proudest legacies. A system to support society’s most vulnerable is an enduring symbol of fairness, collective responsibility, and the belief that no one should be left behind.

    In the aftermath of war, Labour didn’t just built institutions like the NHS and the welfare system. We enshrined at the very heart of the state the idea all should not just be protected from the material hardships but should be given true access of opportunity and the support they needed to make the most of their lives.

    These were not mere policies. They were moral commitments, asserting that dignity, security, and agency should be the birthright of every citizen.

    You can almost feel the ‘but’ coming in your bones. He continued that:

    But today, the welfare system faces urgent challenges. Economic inactivity is rising, with one in ten working age people now out of the labour market, millions locked out of work, and support systems too often unresponsive and inflexible.

    Then, he went onto argue that:

    It is no accident that employment rates among disabled people are almost thirty percent below those of non-disabled people. It is no accident that unemployed disabled people are only a third as likely to flow into work in any given year as other workers. It is no accident only 0.9% of people on the UC health component (the LCWRA) find work each month. And it’s unfortunately no accident that almost forty percent of people on these benefits are stuck in poverty.

    Now, there is one thing we can agree on. Successive UK government’s have continued to strip chronically ill and disabled people of support.

    Only recently, the Canary reported on leaked DWP plans to limit the already woefully inadequate and failing Access to Work Scheme.

    Jobs marked as ‘disability confident’, part-time, and work-from-home on the government’s OWN employment portal have hovered in the single digits for months. Don’t look now, but it has broken into the double digit numbers – a whole 10 jobs – across the entire UK. Repeated real-terms cuts to benefits and regressive reforms have decimated welfare. Benefit rates – even when factoring in LCWRA and DWP PIP – will be well below minimum wage. That’s state-sanctioned poverty. It is no accident.

    DWP PIP cuts will ‘push people into deeper poverty’

    None of this is what Pinto-Duschinsky was getting at. Instead, it’s the beyond parody idea that the generosity of health-related UC and DWP PIP are ‘incentivising’ people into claiming them. In Pinto-Duschinsky’s neoliberal fanaticist world-view, it’s ‘trapping’ people on benefits.

    Compare and contrast with the committee letter:

    other factors might also be driving people to claim both incapacity and disability benefits, including, in particular: rising ill-health, including mental ill-health; rising financial insecurity, particularly among disabled people; and the exclusion of disabled people from the workplace, exacerbated by the rise in the state pension age.

    It seems very possible that these other factors, which we will address in our final report, have indeed contributed to rising caseloads. If this is the case, the legislative changes might not incentivise work, as the Government hopes, but rather push people deeper into poverty, worsen health, especially in more deprived areas, and move people further from the labour market, as evidence suggests has happened in the past with similar reforms.

    In short, Labour’s plans will push chronically ill and disabled people into poverty. Of course, Pinto-Duschinsky and the government already know that. Its own impact assessment showed this. Worse than this, as the Canary underscored at the time, it’s undoubtedly an enormous underestimate too – as multiple FOIs and research has also backed up since.

    Get Britain Working group at it again

    Canary readers might also remember that Pinto-Duschinsky headed up the notorious ‘Get Britain Work’ group. This was the 36-strong line-up of Labour MPs who popped up to back chancellor Rachel Reeves and Kendall’s war on chronically ill and disabled people’s welfare. It just so happened to be populated with a menagerie of neoliberals from the Labour right who took donations from Morgan McSweeney brainchild Labour Together.

    Yes, THAT Pinto-Duschinsky. With him spearheading the charge, the group penned a letter declaring their sycophantic support. And funnily enough, at the time, he also wrote an accompanying column for City A.M. that peddled much of the same guff.

    As the Canary’s Steve Topple summed up, this spouted well-worn DWP PIP and benefit propaganda:

    It was more-of-the-same nonsense: work is good for disabled people; we’ve got a worklessness crisis; people are left to rot on benefits, but the main problem is it’s costing us too much.

    For Pinto-Duschinsky, ‘difficult choices’ is deciding to hurt other people. To chronically ill and disabled people if the government plough ahead with these cuts, ‘difficult choices’ will be whether to eat, heat their homes in winter, forgo vital aids that give them that “dignity and empowerment” Pinto-Duschinsky so vociferously banged on about.

    In his ode to Kendall’s Iain Duncan-Smith tribute act, he wrapped up with:

    We must take on the challenge of reform, not in spite of our Labour values, but because of them.

    According to Pinto-Duschinsky:

    This is not a betrayal of Labour values. It is their fulfilment.

    At the end of the day, this is what Labour is now.

    Pinto-Duschinsky’s column was a blatant attempt to distance himself from the committee’s warnings. The letter is notably absent from his X account. Meanwhile, the column was worth a strategically-timed post – go figure.

    Featured image via the Canary

    By Hannah Sharland

    This post was originally published on Canary.

  • A Ukrainian man living with myalgic encephalomyelitis (ME/CFS) has been forced into a psychiatric hospital in Ukraine, amidst daily drone strikes and bombings.

    His story highlights the lack of knowledge around ME and the additional challenges of Russian attacks on chronically ill and disabled people.

    Debilitating symptoms of ME/CFS

    Marc is 21 and lives in Kharkiv, Ukraine. Until 2020, he was an ambitious student and aspiring doctor. That was, until he caught Covid. He developed long Covid, and now he lives with ME/CFS – a chronic systemic neuroimmune disease which affects nearly every system in the body. ME causes a series of debilitating symptoms. These typically include influenza-like symptoms, cognitive impairment, multiple forms of pain, and heart, lung, blood pressure, and digestive dysfunctions.

    Marc
    Marc. Image via Marc

    In particular, post-exertional malaise (PEM) is the hallmark feature of ME. This involves a disproportionate worsening of other symptoms after even minimal physical, social, mental, or emotional exertion. Often, the worsening can be permanent for the individual.

    After contracting Covid-19 in 2020, Marc continued studying, first at Karazin, Ukraine, then at an Irish university where he received a scholarship. However, his health kept getting worse. Eventually, the university expelled him as he could no longer work or study. He presumed he was depressed because he couldn’t get out of bed for weeks.

    He went back to Kharkiv, but the constant stress and disruption from the Russian shelling worsened his condition. At first, he still worked from his bed as an online English tutor for a couple of hours a day. He tried to volunteer, play guitar, and draw with charcoal and pastels, but it was taking a lot out of him.

    Marc’s artwork. Image via Marc

    A continued decline

    His condition continued to decline. Doctors repeatedly told Marc it was psychosomatic.

    Eventually, Marc couldn’t even leave his apartment and was starving until friends stepped in to help. He told the Canary:

    I have very severe ME, I can’t tolerate sound, light, touch. I can’t talk, walk to the toilet and can very rarely use the phone. Most of the time have to lay with earplugs and mask.

    At least 25% of people live with severe ME/CFS. People living with it are mostly, if not entirely, permanently bed-bound or hospitalised. On top of this, they are often unable to digest food, communicate, or process information.

    He was hospitalised several times, but each time his baseline took a hit. Medical staff forced him to walk, shouted at him, and berated him for his “laziness”. Eventually, he was able to find answers online and realised he had ME. At this point though, he was already bedbound, had severe sensory intolerance, and struggled to walk or communicate.

    Due to not having a source of income, his mother ended up caring for him. But she doesn’t have the funds to keep supporting him financially. Eventually, it meant she decided to seek psychiatric help for Marc.

    His Mom took him to a psychiatric hospital where they pressured him to sign a waiver to be admitted. The hospital then took away his eye and ear protection, and are regularly forcing him to walk.

    Marc in hospital
    Marc in hospital. Image via Marc

    ‘I’m terrified’

    Marc now has daily PEM and is still getting worse. The hospital staff do not understand his condition, and neither do his family. Before his hospital admission, he told the Canary:

    My mom doesn’t believe me when I tell her I have MECFS and is taking me to the psychiatric ward today because she thinks it’s a dissociative disorder, I’ve tried so hard, reached out to brother [and] sister but they believe mom, reached out to a social worker she doesn’t believe me either, my mom opens blindfolds [and] door all the time even though I tell her it’s painful for me, she continues forcing me to speak even though I can’t without an intense burning head sensation.

    So I get PEM and crash constantly at home because my caretaker doesn’t understand/believe my condition, I’m also autistic.

    I’ve already been hospitalised in the ward for three weeks but at that time I could still talk [and] advocate for myself and go to the restroom, it made my situation worse and this time I’m incredibly scared about my health deteriorating.

    I’ve seen 7 neurologists there not a single one believed me or even knew about ME. I asked my social worker to print out a few pamphlets in Ukrainian about ME and a plea to transfer me to neurology department so that’s my only hope, my mom will be pushing for me to be treated for psychiatric issues and I can’t protect myself. I have barely energy to write this. I’m terrified to be honest.

    16 days later, Marc has only deteriorated further.  Whilst he now has his ear and eye protection back, according to his friends, he is eating very little and has been unable to reply to messages for days at a time.

    Although the hospital has acknowledged he has dysautonomia symptoms, they are trying to claim he has a dissociative disorder and is refusing to cooperate with them. Marc told the Canary:

    ChatGPT says my ME is most likely neuroinflammation and dysautonomia-driven. They want to put me in the reanimating extreme ward because I can’t walk, take a shower, or speak normally.

    Mom says I need to try harder and convince myself to get rid of the symptoms. Mom said being home is not an option because she’s scared, and here the doctors will help. Says they’re not helping because I’m not trying. A few neurologists who saw me saw myalgic encephalomyelitis and dismissed it because my CFS was clear.

    I’m also trans on HRT for a year, my results are good and stable, they’re saying [the] dysautonomia is because of hormones and making me de-transition even though it will completely destabilise my body, endocrinologist said to do it slowly, even though before he said my results are good. I don’t know what to do.

    His online friends have started a fundraiser to try to get Marc better medical care. They have also reached out to Ukrainian specialists who treat ME/CFS patients. They are hoping for more competent medical care in a safer, more stable environment.

    Psychologisation rife around the world

    All over the world, ill-equipped families and medical staff are forcing patients with ME/CFS into psychiatric hospitals, in blatant attempts to psychologise the illness.

    Only last year, the abusive parents of a young woman in Greece forced her into a psychiatric ward against her will. It resulted in Katiana having no contact with the outside world. They trapped her in an environment which posed a serious threat to her life.

    Additionally, Katiana highlighted the “widespread disbelief in the existence of ME across the Greek healthcare system. Clearly, this widespread disbelief is not confined to Greece.

    A hospital in New Zealand discharged another young woman – 34 year-old Rhiannon – to a care home for pensioners. Similarly, the staff there were hugely ill-equipped for her care and the environment was utterly inappropriate for her condition.

    The Canary also reported on a similar case for a young man named Karol in Poland. Clinicians and a disbelieving mother previously committed him to a psychiatric ward, and have threatened this multiple times since.

    A care home in the UK is continuing to refuse to give a man with ME and long Covid the vital supplements he needs, to the point he is suffering life-threatening dehydration. And also in the UK, just last year, young women Millie and Carla were both sectioned against their will because doctors believed their ME was ‘all in their heads’.

    Now Marc’s story adds to this growing list of ME patients healthcare systems globally are atrociously failing.

    ME/CFS under military siege

    Marc’s story is a window into the reality of life with ME/CFS under military siege. Not only is he battling the constant disbelief, gaslighting, and abuse which are rife within the medical establishment towards ME patients, but he must contend with doing so in an unstable, dangerous environment.

    Given the impacts of loud noises, light, and other external stimuli on ME, the Russian bombardment not only threatens his life in the usual way but also risks worsening his condition from the environmental impacts on the city around him, too.

    What’s more, as an autistic transgender man, Marc faces multiple layers of marginalisation. Clinicians appear to have weaponised his gender transition against him. Now, not only is the hospital attempting to coerce him into ‘treatments’ that will harm his ME, but it’s also forcing him to de-transition against his will.

    Considering the hospital is so set on claiming Marc’s ME is psychosomatic, it beggars belief that it’s now denying him his HRT. This will undoubtedly put his mental health at risk.

    Ultimately, there’s nowhere in the world that’s safe for people living with ME right now. Least of all, however, a country under military invasion.

    You can donate to his fundraiser here.

    Communication with Marc was via the Severe ME Advocacy Group

    Feature image via Marc 

    By HG

    This post was originally published on Canary.

  • Department for Work and Pensions (DWP) boss Liz Kendall has been caught scurrying away from a young disabled person questioning her about planned cuts to Personal Independence Payment (PIP) and Universal Credit.

    Liz Kendall: the Stepford Wife ignoring pleas over DWP cuts

    It seems that the encounter happened as Kendall was arriving for her speech to the Institute for Public Policy Research (IPPR). Hannah told Kendall as she was arriving that they were one of the potentially 1.4 million people who will see cuts to their DWP PIP thanks to Labour. Hannah wanted to know:

    Why you are choosing to cut the support of vulnerable people in the disabled community rather than choosing to tax the super rich and the corporations?

    An inanely-grinning Kendall Bot – whose operators had clearly programmed her this morning to just smile like a Stepford Wife at any peasants she might encounter – simply walked away, flanked by her lackeys:

    But of course, Kendall was never going to answer Hannah’s question. And chronically ill and disabled people already know what is really going on with these DWP cuts, anyway.

    As the Canary previously reported, as a minimum and according to a DWP impact assessment, as many as 370,000 current claimants could lose their PIP entitlement due to changes in eligibility rules set to be implemented in November 2026, pending parliamentary approval.

    But crucially, about 430,000 future applicants are anticipated to be denied the benefit, creating an average annual loss of around £4,500 for those affected. Therefore, Bryant’s 90% figure is not accurate – because people, including children transitioning from Disability Living Allowance to PIP – will lose out.

    So, the figure is nearer 20% – not 10% – based on the DWP’s own data – plus 150,000 carers who will also lose their Carer’s Allowance.

    However, this is all just before the end of 2028/29. The long-term picture is horrifying.

    A horrifying picture of DWP cuts

    The changes to DWP PIP Kendall is proposing target neurodivergent, learning disabled, and those with mental health disorders. Moreover, disabled people who need help with things like cutting up food, supervision, prompting, or assistance to wash, dress, or monitor their health condition, will no longer be eligible.

    And revelations from a Freedom of Information (FOI) request has also shown that the changes will disproportionately hit PIP claimants over 50 as well. Specifically, the criteria goalpost shifts will deny 1.09 million (nearly 70% of those who could lose out) the Daily Living component of PIP. Part of this cohort is obviously also people Labour is already hammering with the Winter Fuel Payment cuts.

    Another FOI made by a member of the public unearthed that around 209,000 people getting enhanced rate DWP PIP Daily Living will lose it. On top of this, around 1.1 million people getting the standard rate will lose it.

    In total then, nearly 1.4 million people could, on reassessment, lose their Daily Living element of DWP PIP. However, as the Canary’s Steve Topple previously noted, this doesn’t tell us how many could lose their full PIP altogether. This is because the data does not show how many of these people get standard or enhanced Mobility Element of DWP PIP.

    Nonetheless, it’s evident that the plans will be enormously detrimental for chronically ill and disabled people. And in early June, parliament is expected to vote on these plans.

    Kendall Bot goes BRRRRRR

    Yet the Kendall Bot’s programmers have managed to make her immune to any appeals for humanity. Her OS only allows her to a) look angry, b) grin like a maniac, or c) lie through her teeth (as she did at the speech she made after she met Hannah).

    So, it seems no amount of attempts to conjure up empathy from Kendall over DWP cuts will work. Maybe chronically ill and disabled people will have to find other ways to stop Kendall and the Labour government in its tracks.

    Featured image via screengrab

    By Steve Topple

    This post was originally published on Canary.

  • On Wednesday 21 May, Liz Kendall gave a speech to the Institute for Public Policy Research (IPPR). And during it, she repeated a major piece of propaganda about Department for Work and Pensions (DWP) cuts to Personal Independent Payment (PIP). In short, Kendall claimed – like other politicians have – that only 10% of chronically ill and disabled people currently claiming it will be affected. This figure is an absolute distortion of reality.

    DWP PIP: Kendall lying again

    As the Guardian reported, Kendall said during a speech to the IPPR:

    I know the concerns that have been raised about our proposals. I am listening carefully to all the points people raise.

    But nine out of 10 people claiming PIP at the point when the changes come into force …will not be affected by the end of the parliament.

    And even with the changes we are making, there will still be 750,000 more people receiving PIP by the end of this parliament than there were at the start, and spending will be £8bn higher.

    We’ve been here before. Back in early April, Labour MP Chris Bryant said similar on BBC Question Time – that 90% of DWP PIP claimants will not be affected. However, none of this is true.

    As the Canary previously reported, as a minimum and according to a DWP impact assessment, as many as 370,000 current claimants could lose their PIP entitlement due to changes in eligibility rules set to be implemented in November 2026, pending parliamentary approval.

    But crucially, about 430,000 future applicants are anticipated to be denied the benefit, creating an average annual loss of around £4,500 for those affected. Therefore, Bryant’s 90% figure is not accurate – because people, including children transitioning from Disability Living Allowance to PIP – will lose out.

    So, the figure is nearer 20% – not 10% – based on the DWP’s own data – plus 150,000 carers who will also lose their Carer’s Allowance.

    However, this is all just before the end of 2028/29. The long-term picture is horrifying.

    A horrifying picture

    The changes to DWP PIP Kendall is proposing target neurodivergent, learning disabled, and those with mental health disorders. Moreover, disabled people who need help with things like cutting up food, supervision, prompting, or assistance to wash, dress, or monitor their health condition, will no longer be eligible.

    And revelations from a Freedom of Information (FOI) request has also shown that the changes will disproportionately hit PIP claimants over 50 as well. Specifically, the criteria goalpost shifts will deny 1.09 million (nearly 70% of those who could lose out) the Daily Living component of PIP. Part of this cohort is obviously also people Labour is already hammering with the Winter Fuel Payment cuts.

    Another FOI made by a member of the public unearthed that around 209,000 people getting enhanced rate DWP PIP Daily Living will lose it. On top of this, around 1.1 million people getting the standard rate will lose it.

    In total then, nearly 1.4 million people could, on reassessment, lose their Daily Living element of DWP PIP. However, as the Canary’s Steve Topple previously noted, this doesn’t tell us how many could lose their full PIP altogether. This is because the data does not show how many of these people get standard or enhanced Mobility Element of DWP PIP.

    Nonetheless, it’s evident that the plans will be enormously detrimental for chronically ill and disabled people. And in early June, parliament is expected to vote on these plans.

    DWP PIP cuts will be brutal

    Kendall can quote government figures on DWP PIP as much as she wants. But in reality, officials have obviously manipulated them to make them sound less worse than the reality actually is. Kendall and her ilk then repeat this propaganda, in the hope the majority of the public buy it. She may call it her “moral mission” – in reality, it is utterly immoral.

    Unfortunately, chronically ill and disabled people who will be affected by DWP PIP cuts aren’t buying it. Whether their anger is enough to make the Labour government change course remains to be seen.

    Featured image via screengrab

    By Steve Topple

    This post was originally published on Canary.

  • At least £357 million has been wrongly demanded from unpaid carers over six years due to Department for Work and Pensions (DWP) systemic failures, prompting soaring debts, mental health struggles and calls for urgent reform of the carer’s allowance system.

    The DWP has systematically abused carers

    The revelation that at least £357 million in carer’s allowance payments have been made in error over the past six years highlights a devastating legacy of negligence from the DWP.

    This grim figure is not merely a number; it represents the mounting debt and distress inflicted on hundreds of thousands of dedicated, unpaid carers, many of whom are already navigating the difficult terrains of caring for loved ones amidst financial uncertainty.

    Carers UK, which unearthed this figure through newly released official data on fraud and error, has described the DWP’s handling of the situation as an “unacceptable failure”.

    Despite previous assurances about new technologies designed to prevent such overpayments, the stark reality is that minor breaches of earnings rules have led to massive repayment demands.

    The DWP had claimed that by 2019, such problems would be largely resolved. It suggested that their new earnings verification tool would “prevent overpayments in some cases before they happen.” It seems, however, that these assurances hold little weight against a background of systemic failures.

    Making criminals out of vulnerable families

    Many unpaid carers, like Guy Shahar, now find themselves beset by debts that can soar as high as £20,000 due to clerical oversight. Shahar expressed that the enormity of excessive charges appears both “shocking” and fundamentally unjust, given the DWP’s previous commitments to improve the system.

    “They are making criminals out of vulnerable families they are supposed to be helping,” he lamented. This sentiment echoes through the community of unpaid carers, who feel unfairly targeted and victimised by an unwavering bureaucratic system at the DWP.

    The DWP’s reliance on a policy that called for only half of all alerts from its earnings verification tool to be investigated meant that countless overpayments spiralled unchecked for months, if not years.

    In the five years following the introduction of the verification tool, over 262,000 repayment cases have emerged, collectively totalling more than £325 million. Alarmingly, around 600 carers have even faced criminal charges, burdening them—and their families—with criminal records as a consequence of administrative oversight.

    Moreover, the impact of these overpayments stretches beyond financial strain.

    An extraordinary toll

    According to a report by Carers UK, the emotional toll on unpaid carers has been extraordinary, with many experiencing deteriorating mental health and overwhelming anxiety. The average overpayment faced by carers hovers around £4,000, but the ramifications are far greater than mere finances; lives are disrupted, trust eroded, and mental wellbeing compromised.

    As Emily Holzhausen, director of policy and public affairs at Carers UK, pointed out:

    Given that unpaid carers were falsely assured that the problem would be largely resolved, they deserve better.

    In a somewhat reactive response, DWP ministers have finally pledged £800,000 to better staff the carer’s allowance division, with the aim of scrutinising 100% of alerts to stem the tide of overpayments at their source.

    However, this initiative raises the question of why, after years of warnings and clear evidence of failure, such fundamental changes only arrive after media scrutiny and persistent pressure from advocacy groups.

    State-sanctioned abuse from the DWP

    It is clear that the current system is broken, with a 71% spike in overpayment cases reported since 2018. This surge signals an urgent need for comprehensive reform within the carer’s allowance framework, not just to avert future financial crises but to support the critical role that carers play in our society.

    Advocacy groups are clamouring for not only an overhaul but also for increased earnings thresholds that reflect the reality of living costs, particularly when many carers are forced to juggle work and caregiving.

    Ultimately, the situation reflects a deep-seated issue within the DWP—a bureaucratic entity that targets chronically ill, disabled, and older people, and their carers, as criminals and scroungers rather than people deserving of support.

    Carers deserve a system that empowers them rather than burdens them with unnecessary debts and anxiety. The ongoing fallout from these overpayments serves as a stark reminder of the imperative for better governance, transparency, and, above all, compassion in the support of the invaluable role that unpaid carers play in our communities.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • The Department for Work and Pensions (DWP) has come under fire from a group of experts over its proposed cuts to chronically ill and disabled people’s benefits. They have written an open letter to the government, telling it that these cuts will cause “disproportionate harm” to claimants – even to the point of causing “premature deaths”.

    DWP cuts: brutal

    As the Canary has documented, there has been uproar over plans DWP boss Liz Kendall laid out in March to ‘reform’, that is – cut – chronically ill and disabled people’s benefits. It set this out in its Pathways to Work: Reforming Benefits and Support to Get Britain Working green paper.

    Notably, the paper included a suite of regressive reforms to make it harder for people to claim disability benefits like Personal Independence Payment (PIP). The changes it’s proposing target neurodivergent, learning disabled, and those with mental health disorders. Moreover, disabled people who need help with things like cutting up food, supervision, prompting, or assistance to wash, dress, or monitor their health condition, will no longer be eligible.

    And revelations from a Freedom of Information (FOI) request has also shown that the changes will disproportionately hit PIP claimants over 50 as well. Specifically, the criteria goalpost shifts will deny 1.09 million (nearly 70% of those who could lose out) the Daily Living component of PIP. Part of this cohort is obviously also people Labour is already hammering with the Winter Fuel Payment cuts.

    Labour lies: time to call it out

    Overall, Labour and the DWP have already lied about the number of people its Green Paper plans will affect. Research keeps exposing the devastating scale of the governments planned cuts. While its impact assessment calculated 370,000 current claimants, and 420,000 future ones would lose their DWP PIP entitlement, it’s likely to be much higher than this.

    Another FOI made by a member of the public unearthed that around 209,000 people getting enhanced rate DWP PIP Daily Living will lose it. On top of this, around 1.1 million people getting the standard rate will lose it.

    In total then, nearly 1.4 million people could, on reassessment, lose their Daily Living element of DWP PIP. However, as the Canary’s Steve Topple previously noted, this doesn’t tell us how many could lose their full PIP altogether. This is because the data does not show how many of these people get standard or enhanced Mobility Element of DWP PIP.

    Nonetheless, it’s evident that the plans will be enormously detrimental for chronically ill and disabled people. And in early June, parliament is expected to vote on these plans.

    Now, Dr Jonathan Paul Jones from Cardiff University has written an open letter to the government and DWP. It has been signed by 37 other social scientists, who are experts in this field.

    The letter argues that these cuts will cause nothing but harm and should not be implemented. All of the professionals UK-based or with a strong history of UK-based research, many of whom are esteemed experts on disability, welfare, poverty and related topics. It includes a bibliography of supporting academic texts.

    The full text of the letter to the DWP

    We are writing to express our concern about the planned cuts to Personal Independence Payments and Universal Credit as outlined in the March 2025 Green Paper and Spring Statement. As social scientists we feel morally obligated to speak out against policy changes that evidence suggests will cause harm. It is our professional opinion that these cuts will cause disproportionate harm to disabled people and accomplish little or nothing in terms of helping the economy or balancing public finances.

    As demonstrated by the Bibliography attached to this letter, the existing literature indicates that previous similar cuts to welfare, especially those targeted at disabled people, were ineffective in getting people back into work and instead drove people into deeper poverty, damaged mental health and were associated with high numbers of preventable premature deaths.

    Furthermore, the problems caused or exacerbated by such cuts typically end up being even more costly to resolve as they increase the burden on various public services.

    Stop the cuts

    Policy-makers in the UK Government should already be aware of the social research that has proven the ineffectiveness and harms of such approaches, and have been warned by the UN that they must reverse the disability welfare cuts enacted by the preceding Conservative Government. We urge the government to comply with the UN rather than indulge in further ineffectual and harmful cuts targeting disabled people. These cuts will not help disabled people back into work, bring growth, or balance public finances. They are likely to increase rates of poverty, mental ill-health, and premature death.

    We call for all announced cuts to Personal Independence Payments and Universal Credit to be overturned. Should the UK Government proceed with current plans, we implore all MPs to vote against these cuts when they come before Parliament and speak out against continued austerity. Public finances can and should be improved via redistributive measures such as a wealth tax. As once promised, those with the broadest shoulders should bear the heavier burden.

    The full list of signatures, as well as the bibliography, can be read here.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • Department for Work and Pensions (DWP) boss Liz Kendall has refused to apologise after being criticised for ‘misleading’ (or lying, if you prefer) to MPs four times in one parliamentary sitting – by linking planned cuts to Personal Independence Payment (PIP) with support for disabled people’s employment.

    DWP PIP: cuts and lies

    In a Commons session Kendall was questioned multiple times about the government’s plan to reduce PIP spending by £4.5 billion annually, as outlined in the March Pathways to Work green paper. However, rather than addressing the cuts directly, she repeatedly spoke about Labour’s approach to helping disabled people into work – even though DWP PIP is not an out-of-work benefit.

    Stephen Timms, Minister for Social Security and Disability, also faced questions on the cuts but similarly focused his answers on employment support rather than the direct impact of the reductions on disabled people.

    PIP is a benefit available to disabled people regardless of their employment status, intended to help cover the additional costs associated with disability. Experts and disability advocates have expressed concern that cutting DWP PIP risks damaging the financial security and independence of thousands of claimants.

    During the exchange, Labour MP Imran Hussain highlighted the fears of 41,000 disabled people in Bradford who face potential hardship from the PIP reductions. Yet, as Disability News Service (DNS) reported, Kendall responded by emphasising support for disabled people who can work and protection for those who cannot, without addressing the projected £4.5 billion in cuts. She said:

    We want to improve people’s chances and choices by supporting those who can work to do so and by protecting those who cannot.

    But that has nothing to do with the planned DWP PIP cuts.

    And more lies

    Similarly, when Conservative MP Sir Roger Gale and Labour’s Rachael Maskell raised concerns about the impact on disabled people and public services, Kendall spoke about expanding employment support programmes and the health benefits of work, avoiding direct answers about DWP PIP cuts and implying it was out-of-work related.

    To Gale, she said the government would be:

    Consulting with disabled people about how to build our £1 billion a year employment support programme, and we will make sure that those who can never work will be protected.

    Again, this is nothing to do with DWP PIP. To Maskell, Kendall said:

    We have clear evidence that being in work is good for people’s health: good work is good for people’s physical and mental health.

    We repeat, DWP PIP has nothing to do with this.

    Green Party MP Sian Berry labelled the cuts “cruel and wrong,” but Kendall again shifted the focus to employment statistics, saying:

    Disabled people who are out of work and economically inactive are more likely than non-disabled people to say they want to work, and if they are in work, they are half as likely to be poor.

    Once again, Kendall’s response wilfully misled parliament.

    DWP PIP cuts are NOT about work

    Timms was also criticised for conflating DWP PIP cuts with employment support. When asked about the 300,000+ disabled people expected to be pushed into poverty by the benefit cuts, he focused on the desire of disabled people out of work who want employment and the need for support measures.

    A spokesperson for the DWP declined to comment to DNS on why Kendall and Timms repeatedly misled MPs.

    Of course, Kendall and Timms responses are part of the Labour Party government’s agenda with DWP cuts. By reinvigorating the ‘work shy/scrounger/fraud‘ narrative that the state has always propagated about chronically ill and disabled people, they are hoping to get away with throwing countless people into poverty, and killing countless more.

    But when it is this obvious they are lying, it remains to be seen what portion of the public  – and MPs – will buy it.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • Ben Canham, an autistic disability activist from Melton Mowbray has in recent years built up a notable following on X for his courageous journey from being a victim of severe bullying to becoming a vocal advocate for the autistic community.

    Meet Ben Canham

    Having had his whole world tipped upside down at the tender age of 17 when his beloved father passed away from lung cancer, Ben Canham was left devastated and reeling.

    Then the heartache deepened further as only a year later, on the cusp of adulthood, he also lost his mother to heart failure.

    At just 18 years old, Ben was not only grieving two unimaginable losses, but navigating life entirely on his own as an autistic man – who was parentless, orphaned, and facing a future of uncertainty.

    To make matters worse, the system that was supposed to protect him catastrophically failed, as he was left to completely fend for himself which allowed for cruel bullies to step in and abuse him for his weight and his autism.

    The abuse got so bad that the gang of thugs attacked him with rocks and even a knife, whilst hurling horrific insults at him that completely destroyed Ben’s self-esteem, confidence, and even his ability to leave his house.

    Locked away and alienated from society, Ben was left with mental and physical scars which made him too afraid to leave his home, as he feared he would be targeted again.

    Receding into self-isolation in a bid to protect himself and suffering from PTSD and flashbacks from the attacks, Ben eventually discovered a community of people online whom he could confide in.

    Solace in social media and activism

    In a world that must have felt heavy, dark, and utterly cruel, Ben found solace in sharing his story and connecting with people from all over the world.

    Therefore, as his social media presence continued to grow, so did his ability to speak out against the grave injustices that disabled people face.

    Now, aged 28 Ben Canham still uses his platform on X and Bluesky to raise awareness about grief, trauma, and ableism, and is even followed by famous faces such as James O’Brien, Angela Rayner, and Mary Trump, to name just a few.

    Speaking to the Canary, Ben said that he was inspired to become an autistic activist because of seeing other people’s experiences online and wanting to share his story also:

    I think the thing that inspired me the most was just seeing people post about their experiences, and I felt like sharing some of my experiences as well.

    Still reeling from the grief and trauma of losing his parents, Ben says there are good days and bad days and that life is still incredibly challenging and lonely without the nurturing love and care of his Mum and Dad:

    I suffer more from the grief and sadness especially during anniversaries, you know things like birthdays and Christmas. The pain has never gone away.

    Ben, who thinks about his parents every day and the void they left behind in his heart, said that he would:

    like to think that my parents would be proud of me now, knowing how much I’ve gone through and how much I’ve done which have led me to be a stronger person today.

    Passions and progress

    All the grief and challenges Ben Canham faced in his life didn’t stop him from being a powerful voice and champion for the autistic community and with the help of his support worker, he has been able to venture out of his house twice a week:

    They mainly take me out, so I can get out the house, but also so I can do more walking.

    This has been a lifeline for Ben, who at times gets lonely and struggles to go out by himself, and he has recently discovered that being out in nature has improved his mental and physical wellbeing.

    Speaking about his experiences with social media, both the good, the bad, and the ugly, Ben said:

    I feel that for me personally social media has been the biggest help for me in getting through a lot of the things that I have experienced. Like the bullying and the loss of my parents.

    After all the tragic events that went on, I feel like when I turned to social media to share those experiences, that’s when I gained these followers and people reached out to me, and social media became like a lifeline for me.

    With friends all over the world, in Germany, Canada, the US, and as far as Australia, Ben believes he found a supportive network of like-minded individuals who share both his passions and challenges.

    One passion of Ben’s is the US, a country that he loves dearly and has a special interest in:

    I love America, there’s a lot of things that I love about it, I love the history, the people.

    This special interest is one that brings Ben a great deal of comfort, and even his bedroom is adorned with American memorabilia and NYC bedding. It has also allowed Ben to make a lot of friends in the US, who he communicates with on X:

    I speak to people a lot online; I really enjoy it especially because I live on my own, it’s almost like having someone in the room with you.

    The darker side to social media

    However, as much as Ben Canham loves connecting with others online the darker side of social media has not been without its challenges – with consistent online criticism and trolling occurring on daily basis.

    The cruel trolls and social media bullies consistently leave nasty comments on his posts, targeting Ben for his weight, appearance, and autism.

    Recently for instance, Ben shared a post about his health and fitness journey on X, and after receiving hate comments he was left feeling heartbroken and insecure about himself.

    As someone who already lives avoidant restrictive food intake disorder (ARFID) and a lack of body confidence, this took a huge toll upon his mental health:

    I worry about how I look to other people, I get very self-conscious, I might be fat, but at least I have basic human decency, unlike those who judge.

    But despite receiving negative comments and abuse on X and other social media platforms, Ben is determined to not give up on his activism and hopes to encourage others in similar situations to also share their stories and personal experiences online.

    Ben Canham: autism is a superpower

    Ben Canham has a clear message to autistic people:

    You may face challenges, but you can focus on the strengths of the condition, autism is like a rainbow, it has a bright side and a darker side, but every shade is important and beautiful.

    He says he doesn’t let his autism hold him back as he views it as a “superpower” that allows him to look at the world in a different way from neurotypical people.

    I don’t shy away from it, and I am really proud of the person I have become, I feel positive about being a man with autism and learning to become the best version of myself.

    Featured image and additional images supplied

    By Megan Miley

    This post was originally published on Canary.

  • On Wednesday 21 May, disabled people from across the UK will be travelling to Westminster to tell their MPs to vote against Department for Work and Pensions (DWP) welfare cuts.

    Disabled people have been requesting meetings with their MPs over Labour’s plans to cut DWP benefits such as Personal Independence Payment (PIP) and Universal Credit. Even for those without a pre-arranged meeting, you are within your rights to turn up at parliament on 21 May from 1pm and ask to see your MP.

    The mass lobby has been co-ordinated by disabled activists from groups including Disability Rights UK and, WellAdapt, to unite disabled people across the country.

    DWP cuts: brutal

    As the Canary has documented, there has been uproar over plans DWP boss Liz Kendall laid out in March to ‘reform’, that is – cut – chronically ill and disabled people’s benefits. It set this out in its Pathways to Work: Reforming Benefits and Support to Get Britain Working green paper.

    Notably, the paper included a suite of regressive reforms to make it harder for people to claim disability benefits like Personal Independence Payment (PIP). The changes it’s proposing target neurodivergent, learning disabled, and those with mental health disorders. Moreover, disabled people who need help with things like cutting up food, supervision, prompting, or assistance to wash, dress, or monitor their health condition, will no longer be eligible.

    And revelations from a Freedom of Information (FOI) request has also shown that the changes will disproportionately hit PIP claimants over 50 as well. Specifically, the criteria goalpost shifts will deny 1.09 million (nearly 70% of those who could lose out) the Daily Living component of PIP. Part of this cohort is obviously also people Labour is already hammering with the Winter Fuel Payment cuts.

    Labour lies: time to call it out

    Overall, Labour and the DWP have already lied about the number of people its Green Paper plans will affect. Research keeps exposing the devastating scale of the governments planned cuts. While its impact assessment calculated 370,000 current claimants, and 420,000 future ones would lose their DWP PIP entitlement, it’s likely to be much higher than this.

    Another FOI made by a member of the public unearthed that around 209,000 people getting enhanced rate DWP PIP Daily Living will lose it. On top of this, around 1.1 million people getting the standard rate will lose it.

    In total then, nearly 1.4 million people could, on reassessment, lose their Daily Living element of DWP PIP. However, as the Canary’s Steve Topple previously noted, this doesn’t tell us how many could lose their full PIP altogether. This is because the data does not show how many of these people get standard or enhanced Mobility Element of DWP PIP.

    Nonetheless, it’s evident that the plans will be enormously detrimental for chronically ill and disabled people. And in early June, parliament is expected to vote on these plans. So, disabled people’s groups are taking action.

    Lobby your MP

    Disabled people will be asking their MPs to vote against these cuts and stand against these poverty-creating policies, as cuts to PIP and changes to Universal Credit are not being consulted on, this is a vital opportunity for MPs to hear directly from their constituents.

    The lobby will be taking place in Westminster Hall on the 21st May 2025, between 1-4pm. As WellAdapt says on its website:

    On the day, you will arrive to Westminster where stewards will show you how to get to the lobby registration desk.

    We will provide you with a briefing of the proposals and some key messages. From here, you and potentially others from your constituency will meet with your MP wherever arranged.

    If your MP still hasn’t replied by the 21 May – we’d still love for you to join us, as we feel that this is an opportunity for us to show strength and solidarity in numbers…

    DWP cuts: time to take further action

    If your MP does not reply, WellAdapt says you can:

    Attend the mass lobby and “Green Card”.

    This is a time honored way of engaging with your MP, even if they have not replied to you.

    • Go through the Cromwell Green entrance to parliament and pass through security (This takes up to 20 minutes.)
    • Queue up at the information desk in the central lobby and you will need to collect and fill in a “green card.” This includes providing your name and address and the reason for your visit (to oppose the green paper and welfare reforms).
    • Hand the completed green card back to the information desk. The information desk will be able to let you know quite quickly if your MP is not at the House of Commons.
    • If your MP is unavailable the fact that you have handed in a green card will mean that your MP will know you have requested a meeting and your MP will have to write to you and it’s an opportunity for you to let them know your views. Sometimes your MP might send a staff member to meet you.

    If the information desk does manage to contact your MP be prepared to wait for a while.

    For more information, go to https://well-adapt.com/mass-lobby/

    Featured image via the Canary

    By The Canary

    This post was originally published on Canary.

  • Private equity companies have gobbled up group homes and other services for people with disabilities, attracting the attention of state and federal regulators across the nation and alarming advocates. People with intellectual or developmental disabilities have suffered abuse, neglect and even death while under the care of private equity-owned providers, according to a recent report from…

    Source

    This post was originally published on Latest – Truthout.

  • This article contains content some people may find distressing

    Hundreds of deaths linked to failures by the Department for Work and Pensions (DWP) have been exposed by a group of MPs. However, the story is likely just the tip of the iceberg – as the Canary has documented for years.

    DWP: blood on its hands in hundreds of cases

    A report released by the Work and Pensions Committee has concluded that the DWP could have prevented many of at least 240 of these fatalities, urging an urgent overhaul of procedures designed to protect the most vulnerable in society.

    While the committee acknowledges the department’s role as a “lifeline” for millions, it calls attention to the severe consequences that arise from bureaucratic mistakes and the lack of accountability.

    Among the heart-wrenching cases discussed is that of Errol Graham, who starved to death in 2018 after his disability benefits were abruptly halted. The ensuing inquest revealed a series of missed opportunities for communication between agencies. Had agencies shared critical information, it’s possible that support could have been delivered to prevent such a tragic outcome.

    This sentiment is echoed by the committee, which began conducting internal reviews in 2020-21 and has since initiated around 240 investigations into cases of serious harm or death linked to DWP actions.

    The report argues that the DWP’s negligence has led to hundreds of preventable deaths, emphasising a need for a new legal duty to protect vulnerable claimants. They recommend legislation that mandates referrals to appropriate support services whenever a claimant’s circumstances are clearly precarious.

    Paying the ultimate price

    Debbie Abrahams, the chair of the committee, highlighted the psychological toll that engaging with the DWP often inflicts on claimants, leading to further distress and, in some cases, fatal consequences. “Where this led to not being able to get financial support, many had paid the ultimate price,” she stated, underscoring the agency’s failure to fulfil its responsibilities effectively.

    The report also resonates with the tragic story of Jodey Whiting, whose mother, Joy Dove, has campaigned relentlessly for justice since her daughter’s suicide in 2017.

    Jodey lost her benefits after missing an assessment, a decision that was reversed six weeks later—a delay that ultimately proved too late. Joy expressed her hope that the committee’s findings would guide changes that save lives, noting, “If it helps others it will be a good thing,” but lamented the lack of recognition for vulnerable individuals within the DWP’s system. Her painful experience exemplifies the detrimental impact of a system that often fails to accommodate the needs of those it is meant to support.

    Critics have long argued that not enough has been done to address the inadequacies of the benefits assessment system. A previous report indicated that the psychological distress caused by assessments has contributed significantly to adverse outcomes for claimants. Despite repeated calls for a comprehensive review and training in safeguarding and suicide prevention for DWP staff, the government has faced accusations of inertia. The SNP’s Social Justice spokesperson pointed out that claimants have “paid the ultimate price” due to these flaws.

    Internal reviews conducted by the DWP have increased sharply as claimants face severe harm or death. 124 reviews, of which 97 concern deaths, occurred between 2019 and 2021 alone. As Disability News Service reported, there have been dozens more since then. Yet, many campaigners argue that these reviews do not go far enough in addressing systemic issues.

    The tip of the iceberg

    Moreover, they are just the tip of the iceberg – as the DWP only initiates them when someone takes their own life. As the Canary reported in 2021, there are many more deaths on the DWP’s watch that are not investigated.

    Thousands of people have died under the DWP. Among these are:

    • Around 90 people a month between December 2011 and February 2014. The DWP said these people were fit for work.
    • Roughly 10 people a day died between March 2014 and February 2017 – a period of almost three years. The DWP had put these people in the ESA Work Related Activity Group (WRAG). This meant it told them they were healthy enough to start moving towards work.
    • Nearly 12 people died daily over a period of five years – between April 2013 and April 2018. The DWP was making them wait for their Personal Independence Payment (PIP) claims to be processed when they died.

    That’s over 34,000 people. They died either waiting for the DWP to sort their claims or after it said they were well enough to work or start moving towards work. Moreover, in 2018 alone there could have been 750 (if not more) people who took their own lives while claiming from the DWP.

    An academic analysis described such deaths as examples of ‘slow violence’, where delays and negligence compound the suffering of claimants. Despite various recommendations for reform, critics believe the DWP has failed to implement crucial changes and has often obscured the truth surrounding these tragic outcomes.

    The DWP is committing social murder

    As the cost of living crisis continues to exacerbate financial difficulties across the UK, calls for a public inquiry into the DWP’s handling of vulnerable claimants are becoming more urgent. A coalition of MPs from various parties has stressed the necessity for a safe and supportive benefits system, advocating for transparency and accountability in the face of increasing internal reviews and mounting evidence of failure.

    The DWP, meanwhile, gave a statement to the Mirror regarding this story. You can read it here.

    The grim reality is that behind every statistic is a life lost, a family devastated, and a tragedy that could have been avoided. Of course, it is arguable that this is the DWP functioning as it should do: targeting vulnerable people until they either submit or die. Either way, the department has been getting away with social murder for years – and may well continue to do so.

    Featured image via the Canary

    By Steve Topple

  • Whilst the Labour government is fighting a potential rebellion in its ranks due to their proposed benefits cuts, the Department for Work and Pensions (DWP) has released more stats which prove why the benefits cuts aren’t needed – namely, the figures around fraud and error, especially PIP.

    DWP releases latest ‘benefit fraud’ figures

    The Fraud and Error in the Benefit System report is an annual report that is published every May and provides information on how much is overpaid in benefits each year.

    Whilst the government tends to focus on the fraud part of this report, it also breaks down how much was overpaid due to error, on both the part of the claimant and their own error. Not only this, but it also holds the department to account on how much is underpaid to claimants, but this part coincidentally usually receives very little press attention.

    The report found that the total amount of overpaid benefits across the whole system from April 2024 to April 2025 was £9.5 billion, or 3.3%. This is actually down from the previous year’s £9.7 billion (3.3%).

    The total rate of fraud in the system was 2.2%, or £6.5 billion, but again this is down from the previous financial year’s £7.3 billion (2.7%). The total amount underpaid to claimants was £1.1 billion. Add to this the total amount overpaid due to DWP error that was then taken back was £1 billion. That’s countless pensioners, disabled people, single parents, and working families, unduly stressed and struggling to get by even more because of the government.

    What the government are going to focus on is disability benefit fraud, despite it being such a small amount in the grand scheme of the report.

    An admission over DWP PIP

    It’s difficult to get a complete picture of all fraud and errors in disability benefits, due to Universal Credit now being the main unemployment benefit, and that includes all unemployed people and also those who work but need extra support.

    However, the rate of PIP fraud shows just how unserious disability benefit fraud is. In the last year, the rate of total amount of PIP overpayment was 1.3% or £330 million, which is up massively from £90 million in 23/24. However, the breakdown explains why.

    The total amount of fraud was £100 million, up from 0 in the last financial year, but this still only accounts for 0.4% of all PIP claimants. The amount of overpayment due to claimant error almost doubles this at £190 million, or 0.7%, compared with £60 million the year before (0.3%).

    However, a huge reason for this was that claimants didn’t know they had to report an improvement in health, something which isn’t made clear and considering the DWP backlog, probably isn’t easy to do. That accounted for 6 in every 10 pounds that were overpaid. There was also £40 million overpaid due to the department’s errors.

    The amount of underpaid PIP was £40 million (0.2%), compared with £80 million in 2024. Significantly, all underpayments were due to the DWP wrongly deciding claimants should be awarded less.

    So whilst there was £100 million in PIP fraud last year, this is also balanced out by the £290 million overpaid due to error and underpaid to claimants due to the government not believing disabled people.

    Errors upon errors

    Another significant part of the report is that Carer’s Allowance overpayment is included. This hasn’t been reported since 2020, the reason for this of course wasn’t given, but it’s interesting that it wasn’t reported during the pandemic.

    The overall overpayment rate of Carer’s allowance was £160 million in the financial year compared with £150 million in 2020. However. despite these figures being higher, as a percentage of the total claims the rate is now much lower than it was in 2020 at 3.9% now and 5.2% in 2020.

    There’s no huge significant change in the rate of fraud from 2020 to now, with it standing at 3% (£90 million) in 2020 and 2.5% (£100 million) now. Overpayment due to claimant error is 1% (£40 million), compared with 2.0% (£60 million) in 2020.

    It is interesting, though, that the DWP are choosing to publish these figures now – which makes it look like they’ve gotten fraud down since 2020 but not the previous four years.

    To compare this to other benefits, Universal Credit had an overpayment rate of 9.7% or £6.35 billion, which was a decrease from the previous year’s 12.4%. Of this £5.20 billion (8%) was down to fraud, down from £5.26 billion (10.8%) the year before.

    Claimant error accounted for £610 million (0.9%), and departmental error was £540 million. The underpayment rate increased significantly to £390 million (0.6%) from the previous year’s £180 million (0.3%). Whilst not all on Universal Credit are disabled, this will still have impacted a fair number of disabled people.

    DWP: robbing disabled people, robbing older people

    And finally, its not just disabled people the government are failing by underpaying, but of course older people too. Whilst the state pension was overpaid by £190 million, it was underpaid by a whopping £450 million. Though this was thankfully paid back, that’s a lot of scared, hungry, and cold older people.

    Overall, there hasn’t been a significant change in DWP fraud and error rates since last year, but it’s important that disabled people arm themselves with these stats and the fact that disabled people aren’t the ones robbing the humble taxpayer.

    At the end of the day, there’s far more unpaid tax from billionaires that the government fails to chase than there is from people who vitally need support.

    Featured image via the Canary

    By Rachel Charlton-Dailey

    This post was originally published on Canary.

  • As the Department for Work and Pensions (DWP) pushes forward with its Universal Credit managed migration plan, the latest figures reveal what the Canary warned about nearly two years ago: that 24% of people on legacy benefits end up losing their support entirely, thank to the Universal Credit regime.

    DWP chaos under Universal Credit managed migration

    This initiative, which commenced officially in July 2022 following a pilot programme in 2019, aims to shift all legacy benefit claimants to Universal Credit by March 2026. However, the rush to implement these changes has stirred concerns over the welfare and financial security of the claimants involved.

    Over 400,000 households on income-related Employment and Support Allowance (ESA) are now being urged to migrate to Universal Credit, with the DWP increasing the number of migration notifications sent monthly to 83,000.

    Yet, the stark reality is that failure to act within the three-month timeline given upon receiving a letter may result in significant financial hardship. Recent data shows that 381,440 individuals have already lost their benefits. This is 24% of people the DWP has sent migration notices to.

    The Canary predicted in 2023 that this figure would be the case – a prediction the DWP dismissed at the time. We also predicted that it would be mostly women affected. Again, this is exactly what has happened.

    Compounding existing issues

    The urgency of the DWP’s managed migration method is underscored by the staggering figures: while 200,000 claimants have successfully made the switch to Universal Credit, approximately 400,000 remain at risk of losing their vital income if they do not comply with the migration process.

    The DWP previously aimed for a slow-paced migration, with a target completion date set for 2028, but this has now been moved up to just three years away.

    Compounding the issue, the DWP has recently ceased new claims for several legacy benefits, including Tax Credits and Income Support, further complicating the situation for those caught in the midst of this dramatic overhaul.

    Households on these benefits can currently opt to transition voluntarily; however, many fear that they may not be better off under Universal Credit. Once initiated, this move cannot be undone, leaving claimants in a precarious position should they find themselves worse off financially.

    Moreover, specific groups, especially those living with mental health issues, often face additional hurdles in this already complex scenario.

    Advocacy from the Money and Mental Health Policy Institute calls for tailored support, emphasising that the current processes do not adequately account for the unique challenges faced by these individuals. Improved communication from the DWP is essential to ensure that all claimants understand their rights and the vital steps required to safeguard their income.

    Universal Credit: still not fit for purpose

    The lived experiences of these claimants cannot be ignored. Many report feeling overwhelmed and confused, often exacerbated by the strict time limits imposed by the DWP. With the threat of losing their much-needed financial support hanging over their heads, the stress of adapting to a new benefits system can take a severe toll on their mental wellbeing.

    As the managed migration deadline looms, it becomes increasingly apparent that without significant improvements to the support structure, countless vulnerable individuals risk losing their financial safety net entirely.

    The DWP must step up to ensure that no one is left behind in this poorly managed transition. As the landscape of benefits shifts under the weight of bureaucracy, the voices of claimants must be amplified to demand accountability from the government.

    Featured image via the Canary

    By Steve Topple

    This post was originally published on Canary.

  • The national Campaign for Disability Justice is urging the public to sign an open letter to the Labour Party government. This demands that it to commit to including disabled people in the development of its future plans over welfare. In particular, the letter comes as Department for Work and Pensions (DWP) boss Liz Kendall announces work has begun to review Personal Independence Payment (PIP). Part of this also entails its plans to effectively scrap the Work Capability Assessment (WCA) by aligning it to the PIP application process.

    Specifically, the letter is calling on the Labour government to fully involve disabled people and their organisations in reviews of WCA, the PIP assessment process, and the Access to Work scheme.

    The open letter also calls for an urgent multi-discipline safeguarding review, and funding to develop a national strategy for local independent advice services.

    The group will send the letter to the prime minister and key MPs at the end of the current consultation period on the government’s controversial Pathways to Work Green Paper.

    DWP PIP review begins…

    This comes as Social Security and Disability minister Stephen Timms has now started work on reviewing DWP PIP.

    Notably, in March, the government’s flagship and controversial Green Paper set out its plans to both:

    • Change the PIP assessment rules – effectively tightening the criteria around eligibility. Notably, the DWP is targeting certain claimants in particular, namely, young, neurodivergent, learning disabled, and those with mental health disorders with this.
    • Roll the Work Capability Assessment (WCA) into one single assessment. The DWP would align this to PIP.

    Now, as Benefits and Work reported:

    In a desperate effort to distract attention from the growing anger over the proposed personal independence (PIP) cuts, Liz Kendall announced that work has begun on designing a new assessment which will combine the doomed work capability assessment (WCA) with the PIP assessment.

    On Monday 12 May, Kendall announced this review to parliament:

    Personal independence payments are a crucial benefit that makes a contribution towards the extra costs of living with a disability. I know how anxious many people are when there is talk about reform, but this Government want to ensure that PIP is there for people who need it now and into the future. In our Green Paper we promised to review the PIP assessment, working with disabled people, the organisations that represent them and other experts, and we are starting the first phase of that review today.

    In a nutshell, rolling the WCA into PIP assessments means that to get the health-related (LCWRA) component of Universal Credit or the ESA support group, applicants will have to also be awarded PIP.

    However, the Canary’s Steve Topple has previously pointed out a number of serious issues with this. Specifically, he noted how:

    The WCA and PIP criteria are completely different, as are the benefits. The DWP may be asking people for the same information about their illnesses or impairments. But the context is completely different. The WCA looks at what sick and disabled people can do regarding work. The PIP health assessment looks at what support people need. To combine both these assessments is simplifying people’s health. But more often than not, people’s health is not simple at all.

    In other words, currently, DWP PIP is about the extra costs chronically ill and disabled people need to live. Or more to the point, it’s completely separate from whether or not they are in work, or can work. However, Labour now seems set on blurring this line.

    PIP and the WCA: dangerous plans afoot

    What’s clear now is that Kendall is leaning into this to justify the move. In a response to Labour MP Imram Hussain, who challenged her over the DWP’s PIP cut plans, she said:

    I hear very clearly what my hon. Friend says, but I also want to be clear to the House: if people can never work, we want to protect them; if people can work, we want to support them. The truth is that a disabled person who is in work is half as likely to be poor as one who is out of work. We want to improve people’s chances and choices by supporting those who can work to do so and by protecting those who cannot.

    In short, Kendall was tying people claiming PIP to being out of work. She did so again in an interview over the DWP’s reforms with ITV. Listing off a range of the government’s plans to push people into work, she again justified the cuts to PIP and UC’s health element, and rolling the WCA into one. In one telling moment, she said:

    A life on benefits for so many people – it is not a good future.

    Overall, one thing that was notably absent from Kendall’s response to MPs and ITV, was an acknowledgement of how those plans are connected. Specifically, aligning the WCA with PIP right as the DWP tighten the criteria for claiming PIP will invariably deny many access to the health part of UC. Significantly, more than 600,000 chronically ill and disabled people could lose their health element of UC if this goes ahead. This is because they do not receive PIP or DLA, so would no longer qualify.

    In short, the DWP is both looking to change the PIP assessment process itself, and do-away with the WCA. And both have every potential to deny huge numbers of disabled people access to PIP, and UC’s health element.

    The government’s failure to involve them in shaping changes to these has been one part of the problem. So that’s what the Campaign for Disability Justice wants to now change.

    A call for the DWP to centre disabled people’s lived experience

    It calls on the public to support its open letter. This, it argues, will help show the strength of public feeling about the lack of consultation on key proposals and demonstrate a desire for genuine collaboration on workable solutions for everyone.

    As well as calling for the government to avoid making any cuts to benefits, the campaign is looking ahead to how the government can, and must, include disabled voices in conversations and reviews of key services, systems, and policies that impact them.

    The current consultation’s failure to properly consult on the key proposals highlights their lack of insight into safeguarding risks and undermines its claim to be about “helping people into work”.

    Notably, as the Canary previously reported, the government is not consulting on many of the most significant plans in its Green Paper. This includes its cuts to PIP, and the scrapping of the WCA.

    Plans to restrict DWP PIP, a non-employment-related benefit, that actually helps many disabled people to remain in their jobs, demonstrates this point perfectly.

    Pan-disability Deaf and Disabled People’s Organisation (DDPO) Inclusion Barnet is coordinating the campaign. Beyond being against cuts, it argues that groups must forge a pathway for collaboration in future.

    Campaign founder Caroline Collier said:

    Disabled people, who constitute nearly half of all low-income households in the UK, face disproportionate impacts from these Green Paper proposals. Despite this profound effect, the glaring lack of genuine engagement with Disabled people on these vital systems is deeply concerning. We must learn from the past and avoid the catastrophic consequences that can arise from ill-informed benefit changes. This Campaign is a crucial step toward centring lived experience in shaping the future of these crucial support systems.

    The campaign has until 29 June to collect signatures from the public. You can add your name to the open letter here.

    Featured image via the Canary

    By The Canary

    This post was originally published on Canary.

  • As a disabled and chronically ill person, there is nothing worse than ableism: the blatant mix of classism, discrimination, and a basic belief that non-disabled people are superior to disabled people. But disablism – a more conscious and direct act of blatant discrimination or abuse directly aimed at a disabled person based on prejudice around disability and ideas of inferiority (often being more overt and intentional) – is potentially worse.

    It is even worse when it’s being committed by another disabled person, especially when this is being committed by so-called disabled activists, organisations, and charities that are supposed to be protecting and supporting the disabled people that they claim to represent. You may think this doesn’t happen – but it does, and the number of people affected by it appears to be on the rise.

    Ableism or disablism?

    As a long time campaigner and activist, I was completely disgusted when I recently experienced this behaviour myself from a disabled people’s campaign group. This experience left me feeling upset, used, and incredibly insulted. It was very clear that the group had absolutely no consideration of the chronic conditions I lived with and that their method of organising wasn’t accessible for everyone who wanted to support them in both direct actions and online.

    Along with the fact that there is so much of an assault on disabled and chronically ill people right now, under this Tory – sorry Labour – government, the last thing we need is for us to be attacking each other. So, I began to ask myself if this experience has happened to me, am I the only one that has been treated like this? And if so, what is going on here?

    Disablism at its worst

    I wanted to know if this was just a one-off experience for me. So, I decided to reach out on X to see if anyone else had experienced this type of behaviour within disabled and chronic illness communities. I was completely shocked at the number of responses I received both openly and via private message.

    There was clearly a huge issue here, and it wasn’t just me:

    Along with many other disabled and chronically ill activists, campaigners, and organisers there was sadly a wave of responses. From disabled people’s campaign groups to established charities, the disablism was rife.

    One of the people who responded to my post was journalist Melissa K. Parker. Melissa explained to me that:

    When I started the online campaigning against assisted dying it was because, to me, there was a gap. There was no focus on online campaigning, and I couldn’t understand the lack of it because it felt like common sense.

    When I reached out to certain organisations they would say “we have a plan, wait for that…” but it just never happened.

    Let me be clear, I believed and still believe we are fighting for our lives. When I asked for help, a simple share, I was most often told ‘no’ by some of the most prominent organisations. I look back on that time – and I was going through it, a right state, wrecked – and just thinking that if I could get certain organisations behind it, I could do something. I think and believe this is backed by others experiences, and these organisations are disorganised, too concerned with upsetting those in power, hostile to new ideas, and slow to any kind of meaningful action.

    It’s a shame because we need more hand-made protests like that. Why wouldn’t a disability rights organisation want that…? To me, it’s the kind of thing that Barbara Lisicki and others did. It’s become too polished and pristine, done just right. Who does that serve…?

    Disability activist or careerist?

    It was becoming quite clear that the same people who had mistreated me also had form. But it wasn’t just the campaign groups. This problem stretched deep into charities too:

    Many chronically ill and disabled people were being let down, ignored, or removed because their needs don’t fit the narrative being offered. It was telling that there was an almost narcissistic need for some activists to be in total control of organisations. This even extended to people being removed from safe spaces and groups, with no apparent cause or reason. Controlling moderators were not sharing important articles and information to chronically ill and disabled people, due to their choice of disassociation.

    This really has gone too far.

    I asked disabled campaigner Chronically Vexed what they had experienced as a disabled activist trying to start a petition. They told me:

    When I started my petition against the government over their proposed disability benefit cuts, I didn’t think the biggest gatekeepers would be from my own community.

    I didn’t expect unconditional support, but I didn’t think I would be excluded from spaces by other activists. I thought we all had the common aim of getting these proposals stopped – but obviously for some organisations, optics and keeping the status quo are more important.

    It’s exhausting fighting the government – and that should be using all my energy. But sadly it’s more exhausting dealing with this childish pettiness, bullying, and passive aggression from organisations and activists who should know better.

    There’s space for everyone in this fight back against these cuts, let’s not exclude people.

    And this is just one example of one person trying to share a petition (which you can sign here). How many more chronically ill and disabled people are being pushed out of disabled activism by other disabled activists?

    Fighting back against disabled disablism

    There was clearly a major problem with how many disabled and chronically ill people were being treated like this. I remembered trying to get other organisations to support the campaign group the Chronic Collaboration I set up.

    Repeatedly, I told other activists about the fact that there are so many people at home who cannot make a protest in person but want to be included yet are being ignored.

    I was repeatedly ignored myself.

    So, when I saw that there had been a “Disability Rebellion” recently set up for this very reason, I got in touch to ask the organiser, Atlanta, what her experience of discrimination and exclusion by other disabled people was. Atlanta told me:

    So in setting up Disability Rebellion, I have tried to reach out to other movements/charities and have found that some have been unwilling to engage with me. One group in particular doesn’t seem keen on working with newer activists and on the few occasions they’ve interacted with me, it was to be critical over trivialities.

    They showed no interest in working with Disability Rebellion. I didn’t realise until recently that other people faced the same issues and some have told me that they have encountered outright hostility from them.

    Disability Rebellion is working with movements because we can make a bigger impact working together and I believe that gatekeeping fosters the very division that the government can use against us.

    We do not believe in gatekeeping and we believe that we are stronger together. We also believe in organising protests online because many organisations are not utilising the power of online activism, which leaves out the disabled activists who cannot leave their home or get to protest in person.

    A lot of disabled people have told me that they don’t feel represented because they can’t go and protest in person. We want activism to be accessible to all.

    Calling out the disablism

    There is clear gaslighting, gatekeeping, bullying, and discrimination against younger and newer activists – who are clearly being targeted by older, set-in-their-ways activists who also believe they have full ownership of disability activism and full control of what we can and can’t campaign about.

    Shockingly, this is literally going on right now.

    As I was writing this article, new campaign group Crips Against Cuts put out this statement over one of the organiser’s use of accessibility aids:

    This, along with my own experiences, has been incredibly difficult for me to write about and go through – as it has for the others that have been affected by this behaviour.

    Disability doesn’t discriminate – and yet we do

    The last thing I want to do is to criticise the community I come from; the community I want to continue to support – especially at a time when we are already being targetted so much by our current government. But I cannot accept this behaviour from my community either.

    This needs to be called out for what it is. Furthermore, we all need to look at our own behaviour. If this was an employee-employer situation, many of the cases I’ve mentioned here would constitute legal proceedings.

    We know that disability doesn’t discriminate – so, neither should we. Otherwise we are letting the same rhetoric we are fighting divide and conquer us.

    If this doesn’t change it will quite literally set back the fight and potentially change the progression of disability rights campaigning in this country.

    As Canary columnist Rachel Charlton-Dailey has documented in her brilliant new book Ramping Up Rights, the history of fighting for the rights of chronically ill and disabled people has been hard enough as it is. Yet some people in our own communities seem determined to make it even harder.

    Featured image via the Canary

    By Nicola Jeffery

    This post was originally published on Canary.

  • The opinions expressed in this article are those of the author and the disabled person interviewed

    East London Newham council has left a disabled person pushed into homelessness with significant physical access needs in a second floor flat without a lift for over two years. Appallingly, despite explaining that their worsening condition means they need to start using a wheelchair, the council has refused to move them to somewhere with wheelchair access. It has refused to do so citing grounds of a lack of sufficient medical evidence.

    After repeated attempts to engage with the council and its continuing failure to act, the disabled individual approached the Canary with their story. However, they have asked to remain anonymous, feeling that it’s a “scary time to be a disabled homeless person”. Notably, they expressed how they were “terrified” the Department for Work and Pensions (DWP) and the council in question might weaponise the information contained in the article against them to deny benefits and suitable accommodation.

    For reader accessibility and to protect the individual’s identity, the following article will refer to them as ‘Rea’.

    Newham Council: disabled people pushed into homelessness – not its problem

    Rea is a non-binary Autistic and disabled person living with multiple debilitating health conditions. In recent years, they’ve had two surgeries on their lower spine for significant sciatica pain due to two slipped discs. Rea explained how they’d had to have the second surgery due to an abusive ex causing her disc to prolapse after the first surgery.

    While Rea already lived with it, the surgeries have also worsened their facet joint arthritis. Rea detailed how all this has had:

    other effects on other organs too like digestive tract and bladder.

    Alongside this, Rea lives with severe depression, anxiety, C-PTSD, and Borderline Personality Disorder (BPD). Currently, their doctor is also investigating a potential heart condition. Rea explained how heart problems run in their family, and they feel that the “stress of the last 2.5 years” had potentially triggered these heart issues for them.

    And notably, when Rea speaks of the past two and half years – what they are specifically referring to is their treatment at the hands of Newham Council.

    In August 2022, Rea – with their ageing dog – found themselves homeless. Soaring rent prices made the property Rea and two former friends were living in unaffordable. Their two “ex friends” moved countries. But it left Rea with nowhere to go. They told the Canary how it was then that they first approached the East London council for help.

    However, right from the start, the local authority was dismissive of their access needs. They put them up on the 8th floor of a hotel. But, when their dog “had an accident” in the room (peed on the floor), the hotel decided to kick them out:

    without warning or empathy, in their words ‘the carpet is ruined and we need to replace it’.

    After this, Newham Council actively abandoned them:

    Newham refused to move me anywhere else and left me to fend for myself.

    The council’s refusal to house Rea pushed them into homelessness once more. Rea returned to sofa surfing, and eventually, a friend helped them to buy a “shoddy car to live in”. Of course, this was enormously detrimental to their health and unsafe for Rea and their canine companion. Rea told the Canary how they had:

    lived in that car for about a month, during the late autumn early winter time. This was bad for both of us, me and my dog. As a disabled and mentally ill person this was only the beginning of the nightmare I was to endure for the next few years.

    Consequently, this led to Rea having to make a tragic and traumatic choice about their long-standing friend. It was one that has only heightened their isolation and exacerbated their mental health since:

    It got colder and my dog started suffering. I had to make the very difficult decision to put my dog to sleep as homelessness was not good for her as she was 15 and living in a car was not fair for her.

    That broke something in me, and I’ll never fully recover from losing her.

    Temporary accommodation: inaccessible and not fit for purpose

    When they next approached the council – now without a pet – it placed them in “interim accommodation” at a local hotel. Rea explained how this place was “awful and not safe”.

    The council then temporarily moved Rea to another place with no private toilet or shower over a weekend, before moving them into their current temporary accommodation.

    There, it located Rea to the second floor, with no lift access. Rea described to the Canary that they live with chronic pain “all day, everyday” and that:

    Some days are better, others are worse and I’m bedridden.

    But the cruel irony is that because the room isn’t wheelchair accessible, Rea hasn’t been able to get a wheelchair. In other words, right now, the lack of wheelchair access means that some days, Rea is entirely unable to leave their hotel room. On the days that they do, it’s still in immense chronic pain that the council has effectively forced them to climb and descend the stairs.

    Moreover, Rea’s chronic pain has been continuing to get “worse and worse every year”. It has meant that not only is it getting harder to use the stairs, but having to is also making their condition worse:

    some days I’m stuck in my room due to chronic pain meaning I can’t go out at all because of the stairs.

    Rea explained that:

    I’ll be wheelchair bound in at least ten years, maybe shorter, maybe longer, I’m not sure, but it’s degenerative and constant. I’m on morphine patches to make the pain bearable, but without the patches [it] is just absolutely horrendous.

    Appallingly, it is in this context that Newham Council has repeatedly denied Rea alternative temporary accommodation. Rea told the Canary that “Newham Council don’t care”.

    They had requested a review of the suitability of the accommodation. This was only for the council to come back and state they hadn’t provided enough medical evidence.

    In one email correspondence from the council, it stated how a council housing officer had:

    looked on her housing file and noted that you [Rea] previously requested a review and the medical information you provided was sent to our [the council’s] medical advisers who recommended that the accommodation was suitable so the review was upheld at the time.

    In effect, the council was telling Rea they needed to prove they needed to use a wheelchair, and that the medical information they’d supplied wasn’t enough.

    A ‘prove you’re disabled enough’ culture to support

    Of course, this dismissive attitude towards Rea’s lived reality is not uncommon. The onus is often on chronically ill and disabled people to ‘prove’ they’re disabled ‘enough’ to get everything from social security entitlements, medical care, and in Rea’s instance like undoubtedly many others, accessible housing.

    The problem with this is that it’s not always possible to actually obtain that medical evidence. There are often multiple barriers to getting correct diagnoses and adequate care for many chronic health conditions and disabilities. For one, being chronically ill and disabled in itself can be a hurdle.

    In Rea’s case, their combination of constant chronic pain and severe mental health conditions makes the process additionally challenging, and actually poses a risk to their health.

    What’s more, privilege in dimensions of race, class, gender, and other demographics play a significant part in access to diagnoses and care. In short, racially minoritised, working class, women, non-binary, and transgender communities will all have less access to the healthcare system, and face marginalisation, neglect, and medical stigma when they do.

    So, without proper diagnosis and treatment, gathering the medical evidence needed can be next to impossible for some disabled people. Then, the prejudice against so-called ‘invisible’ chronic illnesses and disabilities, and mental health conditions, compounds all this only further. On this basis, it means many disabled people would be shut out from accommodation that’s accessible and appropriate for their needs.

    A ‘shoddily built’ place to live

    Needless to say, this dire accommodation arrangement has been actively dangerous to Rea’s health. However, the inaccessibility is just one of multiple problems Rea has faced with the hotel. This is because, to make matters worse, the building Newham Council has housed them in is also decidedly not fit for purpose and poses multiple health hazards for Rea.

    For a start, Rea detailed how the room itself is “shoddily built”, with just one single-pane window, mice in the walls, and problems with leaks.

    They relayed to the Canary how:

    The walls are thin and I can hear everything

    Located on a busy main arterial road right next to a petrol station, Rea told the Canary how the noise is taking a significant toll on them:

    The noise from the petrol station is really bad, people rev their engines all hours of the day and night, shouting and fights. It’s noise torture.

    Alongside the constant clamour from the petrol station, the other residents at the hotel have been making it hard to sleep soundly as well. Rea explained how their neighbours shout and bang on their walls and this is making their C-PTSD worse. As a result, they expressed that they are:

    constantly on edge and having near nightly panic attacks.

    The fire alarm going off often, at random times, has only added to this. Rea said that:

    even people showering makes it go off, and it has gone off at 2am, 3am, 4am before multiple times, and it triggers my C-PTSD every single time. Couple that with near monthly fire drills and that’s a lot of alarms going off.

    On multiple occasions, Rea has also gone without hot water – which has only made things harder on their chronic pain:

    Hot water is never guaranteed and there was one instance where there was no hot water for two weeks during December time. The amount of times I’ve gone to shower (which is hard with my disabilities) and there’s been no hot water, or the hot water stops working mid shower, is appalling.

    None of this makes it acceptable temporary accommodation for anyone to live in. However, it’s all the more atrocious for Rea as a disabled person living with C-PTSD and severe mental health problems.

    And not only has the disgraceful unlivable conditions put Rea’s health at risk, but the hotel is even actively unsafe for them on multiple levels.

    Actively unsafe accommodation: harassment of vulnerable residents

    Rea detailed to the Canary that they have been harassed by “multiple men” at the hotel. They recounted how:

    one even knocked on my door and tried coaxing me out of my room to do god knows what, and this has happened to multiple women in the building.

    It’s evident that the hotel is unsafe for women, female-presenting or feminine appearing non-binary individuals.

    Staff at the hotel have also entered Rea’s room on multiple occasions without warning. For someone with trauma like Rea – it has been highly triggering. Rea said that:

    staff have even entered my room while I’ve been sleeping as we have to have monthly room checks. Staff have keys to every room in the building and they’ve come in my room without giving me time to wake up to open the door, multiple times, again more nightmares of that.

    In one instance, maintenance staff “trashed” their room, using their towels to mop up a leak while Rea was out visiting family. They came back to “utter shambles”, and Rea explained that:

    This has caused irreparable psychological damage and the level of anxiety I get when I have to leave for appointments or other things is insane.

    No social housing available under Newham Council

    When Rea contacted Newham Council about all this, it met them with only further dismissal:

    I’ve told and emailed Newham council about all these things, the men harassing me, the maintenance fiasco, there’s even mice in the walls.

    I even told Newham council to please move me, explaining the above and to please move me somewhere with a lift, even psychiatrists have sent them letters explaining that this place is no good for me, wanna know their response? A half arsed apology and told me to go private.

    Rea described how their first housing officer had been “uninterested” in helping them. For “months”, there was silence from the council about all the issues they’d raised. Rea later found out that their housing officer had left – but that wasn’t the worst part:

    after months of not hearing anything, thanks to me sending an angry email, I find out that my housing officer had left that job three MONTHS before my email, and that my case had been forgotten and left with NO ONE.

    So I had no housing officer or anyone on my case. They gave me a new person who again was uncaring and uninterested in helping me. I’ve heard NOTHING from them since.

    Throughout this horrendous period of neglect from Newham Council, Rea has desperately searched the council’s social housing register. However, they keep coming up empty. Rea said that:

    I’ve been in this place for two and a half years. I bid on properties, when they actually have any come up – I learned that logging in at midnight on a Thursday/Friday is the only way to even have a chance at getting a property. But most of the time there’s NOTHING to bid on. I’m a priority home seeker, but considering that I’ve been here for as long as I have, it doesn’t seem that way.

    I log on every week just to be disappointed with zero eligible properties showing up, and when they do I’m already too late. The devastation each week is getting to me.

    Ultimately then, there’s been no urgency from Newham Council to move Rea into a safe and long-term home. The council’s housing officers have, atrociously – left Rea entirely without support.

    Putting disabled residents’ lives at risk

    However, Newham’s failure to move Rea into social housing is perhaps unsurprising in the context of its lack of supply more broadly. In evidence the council provided to the London Assembly Housing Committee, it told it that:

    There are currently over 36,000 households on the housing register, most of whom also have a reasonably [sic] preference… The lack of supply of social housing is a key barrier to moving people on from temporary accommodation – each year around 6-800 social rented properties become available.

    In short, it simply doesn’t have enough social housing to meet demand. Invariably, it’s disabled people like Rea with accessibility and other specific needs, who bear the brunt of this increasing lack in social housing stock.

    After two years of living somewhere inaccessible, unsafe, and triggering, it’s massively taking its toll on Rea’s physical and mental health. Rea confided in the Canary the harrowing impact of their ongoing living situation:

    Two-plus years of it I’m really surprised I haven’t ended my life, that’s how all of this has made me feel, I just want it all to be over with.

    The council’s de facto abandonment of Rea in the horrendous accommodation is making them feel suicidal. Rea summed up how this is entirely on Newham’s hands:

    If I have to continue ‘living’ in this place my death will be Newham Council’s fault. I cannot physically, mentally, and emotionally stay in this place anymore. I’d rather be dead than deal with this suffering anymore.

    The Canary checked that Rea has support, and that they’re not currently at risk of harming themselves.

    However, this underscored an important point. Checking in on Rea’s wellbeing is something that Newham Council is – and has not – been doing. It has in fact done quite the opposite. It has left Rea trapped in unsuitable, unsafe, and arguably, hardly habitable temporary accommodation – not simply without regular contact, but practically without any contact at all.

    And according to Rea, theirs isn’t an isolated story:

    I’m not the only one who experiences this from Newham Council. Many people have told me they’re the worst council in London, and Newham Council continue to prove them right.

    Moreover, Rea has witnessed it firsthand with other residents in their building too:

    They don’t care about their vulnerable and disabled homeless. They continue to put disabled people in this building on the 1st, 2nd, and 3rd floor- again with NO LIFT.

    Newham Council says…

    The Canary contacted Newham Council for comment. A Newham Council spokesperson said:

    As a Council we have a duty of care to residents seeking our help. Since this individual has chosen to be anonymous, we cannot address all the issues raised.

    However, we do our best to ensure everyone gets appropriate accommodation for their needs; and we have a robust complaints process for those that feel these have been inadequately met. We would encourage this person to contact the service directly for us to respond.

    On a more general note, it is no secret that the country, and London in particular, has a serious housing crisis. There are simply not enough affordable homes available for rent.

    Our housing team works under enormous pressure to find places to stay both short and long term. We are proud to say they do this with the utmost professionalism, humanity, and care, never forgetting that they are dealing with individuals and families often with complex needs.

    However, it’s clear that Rea’s experience is part of a broader set of systemic problems at the East London council.

    Systemic housing problems and an ableist culture writ large at Newham Council

    In October 2024, the Regulator of Social Housing (RSH) handed Newham the worst rating for its housing stock.

    Notably, it issued its first ever ‘C4’ grading to the London borough. This is the lowest possible rating of its new consumer standards that it introduced in April 2024. Specifically, this refers to “serious failings” where landlords need to make “fundamental changes” to the condition of their properties.

    In Newham Council’s case, RSH found that at least 20% of its homes do not meet basic living standards. On top of this, the regulator identified other damning issues with its stock, including:

    • More than 9,000 fire safety remedial actions that needed attention. Nearly nine in ten of these were overdue by over a year. Close to half were high risk.
    • Of 16,000 homes, it had not carried out electrical condition tests on 40% of these for more than 11 years.
    • None of its homes met smoke and carbon monoxide alarm requirements.

    Following these scathing revelations, the Labour Party council’s housing lead, councillor Shaban Mohammed, resigned from cabinet.

    In the context of its appalling social housing record, perhaps it’s little wonder too then that the council’s temporary accommodation is so atrociously unfit for purpose. But alarmingly, this is also what Rea could face when they finally get access to social housing.

    Now, Rea’s story has shown how the council’s abysmal housing situation is impacting disabled residents. More than this however, the neglect and dismissal of Rea points to a more embedded ableist culture that’s compounding these issues for disabled people experiencing homelessness in the community.

    Ultimately, Rea felt that:

    They don’t treat us like people, we’re just cattle that get put in these places to rot and suffer. We deserve kindness and better accommodation than this, but the government continues to blame us for economic problems and Newham Council will be responsible for many deaths, including mine, if they don’t get their act together.

    Featured image via the Canary

    By Hannah Sharland

    This post was originally published on Canary.