We need infrastructure to support each other for the long haul, not just through emergencies like coronavirus

The UK has been experiencing its highest ever rates of coronavirus (Covid-19) infections in recent weeks. As communities brace themselves for another wave of …

By Tom Anderson

The UK has been experiencing its highest ever rates of coronavirus (Covid-19) infections in recent weeks. As communities brace themselves for another wave of the pandemic, it’s a good time to take a look back at the different grassroots initiatives that have been set up to help deal with the many crises caused by the virus.

When the coronavirus pandemic hit in 2020, thousands of grassroots groups were set up at a street level, aimed at supporting people through the lockdown. Solidarity funds were created to give people financial support, and community food cooperatives were set up around the UK.

For a short time, ‘mutual aid’ became a household buzzphrase.

Looking back, a lot of these emergency responses to the coronavirus pandemic were – let’s be honest – a flash in the pan. Short lived projects, which ran out of steam as the lockdowns went on. Others – such as Bristol’s BASE & Roses mutual aid food distribution project – have developed into longer term pieces of infrastructure.

The mutual aid groups that have proved the most resilient are those which were not – in fact – an emergency response to coronavirus but were intended as long term responses to the oppressive society we live in. Projects like Cooperation Kentish Town, Cooperation Birmingham, and UK Mutual Aid are all grassroots initiatives that existed before the pandemic but were able to respond effectively to the emergency situation posed by coronavirus.

Shoal Collective – a cooperative of radical writers that I’m part of – interviewed Ella about her experience of a UK mutual aid group, and about how she received support from the group during the pandemic. She’s asked us not to mention the name of the group to help protect the privacy of the people mentioned in this article.

Mutual aid helps us survive through crises

Shoal Collective asked Ella why the group was set up:

The group is not specifically an anarchist group, but it’s kind of – it’s a group run by disabled queers. And it actually got set up when the Tories got in the last time [in 2019]. So it wasn’t set up specifically for the pandemic, it was set up kind of in the knowledge that with the Tories getting such a huge majority and continuing to go down the path that they’re going down, a lot of people were going to need support through mutual aid, particularly disabled people.

People can post requests and offers to the [Facebook] page. For example, people might ask for financial support if their benefits have been stopped, or for advice. Sometimes people need or offer practical support, other times it’s emotional. People also give away things they don’t need.

Ella explained:

Often people who’ve been in a similar situation themselves will reply and say “I was in that situation and I did this” or “have you tried this?”

So it’s a different feel to the newer more mainstream mutual aid groups because there is no division between the people offering support and those being supported.

“An ableist culture”

The group is specifically a forum for mutual aid for disabled people. According to Ella:

I think it’s a very specific mutual aid group because it’s run by disabled people. So it’s a bit different from the ones that popped up around the pandemic, which had a bit more of a charity feel. Don’t get me wrong [all of the mutual aid groups that were set up at the beginning of the pandemic were] very positive and much needed. But I noticed that people had this binary in their head that either you were a ‘helper’ or you were ‘being helped’.

More people seemed to engage as a ‘giver’ of help rather than a receiver. This worried me in terms of Covid safety. I also found it interesting that a lot of us get our sense of self worth from feeling that we are invulnerable and we can help others who are more vulnerable. We have an ableist culture where we don’t feel comfortable asking for help.’

Young disabled people are more used to thinking of themselves in need of support but that this isn’t a negative thing, and they also support each other. And I think that’s why disabled people were really well placed at the start of the pandemic to coordinate support, because they had so much experience of it already.

Using mutual aid

Ella described the confusion caused by the government for vulnerable people:

I thought I was vulnerable to the virus particularly in the beginning because I’m asthmatic. People who were clinically extremely vulnerable (CEV) were shielding, they were not supposed to leave the house at all. And those of us in the clinically vulnerable group were in between, we were supposed to be very careful, but the government didn’t explain what that meant. Because we were all supposed to be social distancing anyway.

Ella’s household was also affected financially during the lockdown.

I had a part time job as a PA, a personal assistant, for someone who was extremely vulnerable, and my flatmate Dominique was a sex worker, so during the first lockdown neither of us were able to work. My employer, who was the person I did personal assistance for, was really nice, so I was still being paid. But of course Dominique wasn’t. I was able to access money through family and the benefits system to support us through those few months.

When Ella and Dominique were due to return to work, the situation became more complex:

At the end of June 2020 I wanted to go back to my work and my flatmate wanted to go back to her work. But it wasn’t safe for me to go and do housework for someone who was CEV while Dominique was doing sex work.

I reached out to someone in the mutual aid group who I vaguely knew. They had mentioned in the group that they had a spare room and that they and their partner work from home. So I stayed there for a few months and it was really helpful. I wanted to be with other people but to be safe and to be able to do my job safely. Dominique’s work is important to her as well and she had a friend who was looking for a room, so it worked out OK.

“I still have a lot of anger”

Ella felt that the UK government shouldn’t have allowed people like her and her flatmate to be put in that situation to begin with. According to Ella:

I still have a lot of anger about the way we’ve all been treated during the pandemic by the government. Neither of us should have had to change our living situation.

The way the government didn’t accommodate marginalised people… it’s inhumane to expect disabled people to stay at home alone and not leave the house for an extended period of time. It’s also just not practical because we live interdependent lives. Huge numbers of disabled people have personal assistants or carers, or live in households with others who go out to work, and many of them have a lot of medical appointments. The epidemiologist Devi Sridhar said that keeping cases low in general through a better Test and Trace system would have been a better way of protecting people. For me that also means paying people properly when they need to self-isolate, and giving out good masks to everyone, like they did in some Asian countries where deaths were much lower.

Ella pointed out that sex workers were not supported financially during the pandemic:

It’s probably quite common for someone who is a PA or in a care role to be living with someone who’s doing Covid-risky jobs [like sex work] because they are both quite low paid jobs that people who are marginalised tend to do. And it’s probably not uncommon for disabled people to do sex work themselves, because it’s flexible work.

Ella also pointed out that the government hadn’t set up any sort of priority vaccination scheme for sex workers, unlike some other countries like Bangladesh.

Unnecessary deaths

Ella said that she is still angry about how the government has handled the pandemic. She said:

We’re governed by these neoliberal extremists who are so loath to restrict business in any way that they’re willing to sacrifice 130,000 people [this figure has risen to 147,000 since the interview took place]. And that’s just the people we know have died from Covid. It doesn’t include all the people who died because they couldn’t get treated for other health conditions, or from suicide or interpersonal violence which increased during the lockdowns. The lockdowns were needed but they wouldn’t have been needed if the government had prepared properly and funded the health service properly to begin with.

Ella went on:

It also annoys me that it’s divided people from different marginalised groups because we had different needs during the pandemic, but it didn’t have to be like that. And I think that was deliberate.

Both a disaster and an opportunity to create something new

Ella felt that the mutual aid response to the coronavirus pandemic in the UK had been an opportunity for real radical change:

At the start of the pandemic, I was very scared and worried. But I was also excited, because I thought this is a moment we’re going to have real radical change. The public sector and capitalism is collapsing and the people are taking over. The idea of mutual aid suddenly became very mainstream.

The group that Ella was in gained a lot more followers when the pandemic started, but this has since petered out and gone back to a similar level to before the pandemic. Ella explained why she thought the group had been resilient enough to carry on:

Maybe the group has outlasted the pandemic because there’s more of a shared political affinity. There was already a prior commitment to mutual aid because of people’s fear and horror of another term of the Tories. Mutual aid is a foundation of queer and disabled politics as well as anarcho communist politics.

You can read about the black roots of mutual aid here

I also heard about local councils sucking the life out of some Covid mutual aid groups, but there was no local government involvement in this group or anything like that.

Mutual aid is something we need to build long term

The interwoven crises caused by coronavirus are not isolated emergencies; in fact, our society is constantly in crisis. This crisis is caused by the dominant ideology of our society, which tells us that profit is more important than people, and that the only solution to our problems comes from Westminster.

We need to challenge this ideology and create a new narrative that centres on people, communities, and the Earth instead of power and profit. We also need to understand that – if we are not going to be powerless victims of capitalism’s never-ending crises – we need to build resilient grassroots infrastructure that begins to address and meet the needs of our communities. Only then can we build our own autonomy, instead of relying on a state that is always going to fail us.

Tom Anderson is part of the Shoal Collective, a cooperative producing writing for social justice and a world beyond capitalism. This article is part of Shoal’s ongoing work focusing on mutual aid.

By Tom Anderson

This post was originally published on The Canary.


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